Aromatase Inhibitors: Did you decide to go on them or not?
Nanaloves: I’m about to start arimidex and just feel that the contraindications , bone issues etc. are overwhelming. I’m 70 years old, dodged a bullet I feel with zero stage DCIS but the follow up is pretty much no different then if it was more aggressive. I’ve just done 33 treatments of radiation and now they advise arimidex as a preventative. I’m not sure with the beginnings of arthritis and lower back. sensitivity already that I should take it. Anyone not take it and not have a recurrence within the 5 years.
Interested in more discussions like this? Go to the Breast Cancer Support Group.
There are a few 'eating for cancer' videos on YouTube put out on a Mayo Clinic site there. And a Ted talk by, I think, a doctor from Mayo.
@callalloo you have osteopenia, not osteoporosis, and don't need meds. You have a chance to do things more naturally. Right now, I take Tymlos in the morning and have to stay in bed for 2-3 hours. I don't have Hobson's choice or any choice at all, really!
I know. You, and others here, are helping so many people by sharing your experiences and what you've learned about prevention and, if needed, drugs.
People usually learn things the hard way, not benefitting from the wisdom of others. Mayo Connect is a wonderful resource for changing that process for those who found their way here. (And the others they can in turn help by what they've learned.)
I should have come on here earlier! Noone told me about the pain of fractures, or the loss of independence.
@[pbnew, the video is working again.
In this video, Dr. Dawn Mussallem, a cancer survivor herself, shares information about food and diet that helped her and has helped her patients.
Dr. Mussallem is a physician at Mayo's Center for Breast Health where she leads the integrative medicine and health program within the Breast Center.
Cancer-Fighting Foods
https://connect.mayoclinic.org/event/cancer-fighting-foods/
I’m 63 ,dcis zero stage. Took anastrazole after radiation and couldn’t tolerate side effects. ! After two months - I stopped it.
Now they want me to start tamoxifen! Hoping to get opinion of mayo dr.
Anyone else have this experience?
At age 72 (as of June), I have decided to not take the Anastrozole or the Tamoxifen, and likely not the radiation because I do not want to spend the rest of my time sick and dealing with the serious side effects. Opening up myself to getting osteoporosis is just trading one serious disease (cancer) for another serious disease (osteoporosis) and I don't want to be sickly, in pain and miserable for the rest of my life. I am however, going to try as many of the natural type treatments as I can, including diet, stress management, exercise and naturopathic help. I am looking into the Mistletoe treatments that are used a great deal in Europe, but are not yet approved in America. Some people use it as a stand alone treatment instead of the traditional ones and others use in in addition to their treatments to help manage the side effects. I know that this is not the path that many would take, but for me, at my age, it is a more acceptable way of seeing my life for the time I have left. 🙂
I tried Anastrozole and Letrozole. Different side effects with each. I was SO SICK with Anastrozole that I stopped taking it after 3 weeks. My back pain in the spine was beyond manageable. Headaches, digestive problems. I think I'm done with pharma AI's. Meeting with alternative medicine DO.
Look online for more info.
Welcome @pattyayn59. Have you submitted your question about switching to Tamoxifen on Mayo's patient portal?
There are others here like @francine6829 and @lisman1408 who have been able to successfully switch from an aromatase inhibitor to tamoxifen with fewer side effects.
I'm also not taking any anti-hormone drugs, in part because I'd be trading a 5% chance of recurrence if the genetic testing is valid (and two oncologists I saw think it is) for a 100% likelihood of needing to go on drugs for osteoporosis. I have a few other reasons for not taking an aromatase inhibitor but wanting to avoid a certain osteoporosis threat gets my attention.
But am doing whatever else makes sense that can improve health. I haven't researched the mistletoe stuff and would be interested in reading an update about it if you take it.