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Living with a trach (tracheostomy), need advice.
Head & Neck Cancer | Last Active: Apr 7, 2023 | Replies (42)Comment receiving replies
Ok Thomason I just went through all my supplements - no biotin but I know that I have taken it before. Also I was put on Dexamethasone my 2nd week of treatment because I was covered with hives large hives from head to toes they didn’t know why - it took away the hives and it caused diabetes so then I had to give myself daily shots and test 3 times a day - this went on for 2 months- I lost almost all my hair and had bone pain during treatment- but It took me months to get a Dr to check my thyroid- I was having palpitations and pain in my limbs - so I was told to fast and not take anything before the test but I’m hypothyroid I take 88 mcg everyday but like you I still wake up and it’s really hard to walk and use my hands I take pain medication and stretch to get it working and I’m being diagnosed with neuropathy for that I was told the chemo Cysplaten is a culprit for causing permanent neuropathy. I just have a hard time if I do PT and exercise it causes terrible muscle and bone burn to the point I can’t sleep but I keep giving up - but I am determined to try again now that the warmer temperatures are here I want to know if I get better if I keep at it - if I will breathe better without the build up and maybe my muscle recovery time is just longer and will get better.
Have you noticed body pain and breathing getting better for you with exercise?
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Dear Mindy,
You really went through hell. I am so sorry to hear of all that pain. The last two years, I have not done my pre-cancer exercise routine. It isn't that I can't, it's just that living out in the country keeps me very busy physically. With the trach, my energy is back, so gardening, canning, and drying food, mowing the lawn, hanging laundry (to save on electric bill), grocery shopping, and cooking is my exercise. It is difficult to get out of bed some days, and usually there is a nap in there somewhere! There are many animals that need cared for too, so that takes energy. Yes, I force myself to plow through it, and it does help to stay physically active. But, resting is also very important--a delicate balance. Activity does not seem to help my breathing, or lessening the pains. As long as the trach-tube is cleaned out a few times day, breathing is okay. The Integrated Specialist tested for Vitamin D, so sunlight is very important. One Vitamin D3 2000 mg. per day is good too. The pains in my hands (thumb and down to wrist) come and go. By the way, X-rays of the hands showed nothing, which was surprising. I have a feeling that with time, you may start getting better.