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giarc60 (@giarc60)

IVIG Infusions

Neuropathy | Last Active: 19 hours ago | Replies (183)

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@janstar61

Thank you very much for your help. I guess my other question is, what happens to people who don't always have someone to watch over them after they get an infusion. Do they have to hire a private nurse for a few days?

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Replies to "Thank you very much for your help. I guess my other question is, what happens to..."

From my own experience with infusions, even the infusions at my home clinic, if I had a reaction I would need to call 911 if I felt the reaction was critical and needed emergency attention. Otherwise I would call my own doctor to let them know my experience.
If I was in the clinic at the time, that was another story. Then I was quickly treated with a med to counteract the negative reaction and everything was fine.
My husband is with me so he was also my back-up plan and checked on me frequently at home.
When you travel are you alone?
Do you often have reactions to your infusions?

Ive been doing sub q gammaglobulins for several years in myself. I take Benedryl 25 mg and Tylenol 2 325mg before infusion and drink lots of water/fluids before. I rest the night after infusion and have not had any problems. The HIZENTRA, the gammaglobulins I get supply an epi pen, but have never had to use it. I have an immune deficiency and small fiber neuropathy.