@ljean63, you've got a lot going on. It's understandable that you're not always here responding to posts.

I can imagine your husband is getting tired of it all as new things keep popping up. It must be tough for you too, to keep his spirits up and to put your feelings as second.

Please know that we're here any time you have questions or just want to vent or sit and have a virtual cup of tea together (so to speak).

@ljean . I have both bladder and urethral cancer, and LGMDr23, all rather advanced. I bleed a lot and live in a world of semi-solid catheters and pain. My wife knows I must deal daily with deliveries of meds and equipment, and walk when I can. But she tries to ignore the whole thing because she has chosen to do a lot of the work. Clean up bloody beds, do all the driving, wash a lot of clothes. Ignoring it is a mistake because I do all I can to take the pressure off her. But there are some trade-offs for both of us.. She cooks only one meal per day. I am in bed about 5 hours per night, but 2 hours per day I am in my big chair. But I try to keep her informed about my issues, and partly because I, too, need the company and support. I do all my own diabetic and cardiac testing with the latest modern equipment, and she really is not are of most of what I do to help myself. I wish she know, but I do not wish her to do more, just listen when I need to talk. I am the one who Is always too tired . oldkarl