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@alh123

So I have looked more into the mayo clinic program and I watched the video. Thank you very much for that. I am well-versed in centralized pain theory , so it was more valuable in terms of what the Dr was like and also hints at how the program approaches things . It certainly sounds like it’s the right thing for me. I was curious about your remarks particularly regarding Dr. Sletten and your choice of the Florida program. I noticed there’s also programs in Rochester and in Arizona. talking to patients and staff ,did you get an idea of whether all these programs are entirely equal in terms of their emphasis or would there be a specific team or place that would suit someone like me a little more.? I am the classic severely deconditioned chronic pain patient at the end of their rope as he says. I am functioning at a very low level and have very poor quality of life . So nothing unique there . The only thing that might make me different is that I do come from a fairly recent medical background and have a lot of experience treating acute pain but also chronic pain patients in times of crisis in the emergency department. I guess they would tell me at the intake process whether there would be a setting or team more appropriate for me,
Anyway I certainly to understand the basic program they offer . it looks excellent and it’s so great it has helped you so much . I need to look into and compare the different programs and their cost, as coming in from Canada with no insurance makes it a big deal on a fixed income. I’d also be interested in your thoughts about how this compares to some of the other programs available Eg the Cleveland clinic and some of the expensive residential programs that are online .
Thanks , in advance .

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Replies to "So I have looked more into the mayo clinic program and I watched the video. Thank..."

I wouldn't go to the Cleveland Clinic. I went there and they screw all my appointments I was there for. I went for ehlers-danlos and they didn't set the appointments up and when I got there they set me up with a pediatric family that did nothing for me. I had to try to set up my own appointments and they put your test results on your portal and don't go over them with you they wait til your follow up 3 months later. So I would find somewhere else.

Very frustrated.

@alh123 I'm glad you've looked in to PRC more and feel it may be a fit for you. I understand your insurance concerns and about traveling from Canada.

For me, it was between Florida and Minnesota as they were each a few hour flight to get to from New York. I preferred Florida because Dr. Sletten himself was there and quite simply I'm a more of a tropical kind of girl!

I reached out to Erica Torres, Program Admissions Coordinator at the Florida campus and was advised that the education provided at all 3 campuses is the same however, the locations vary by enrollment/group structure and facilitation of groups. I recommend reaching out first and foremost to understand cost, insurance, etc... that is a pretty big detail.

Here is contact information:

Rachel Harris | Coordinator – Pain Rehabilitation Center | Mayo Clinic 5777 East Mayo Blvd Phoenix, AZ 85054 |Phone: 480-342-6240

Peg Dokken RN
Admission Coordinator
Mayo Clinic Rochester
Pediatric Pain Rehabilitation Center
507-255-1918

Erica Torres MSN RN
Program Admissions Coordinator
FLA Mayo Pain Rehabilitation Program
904-956-1780

I'm sorry, but I do not have any knowledge of Cleveland Clinic or any other pain rehab programs. I initially applied to be medically evaluated at Mayo because they were the best of the best, however was denied. Basically, my conditions were not further treatable and could be handled in my local area. That was a bit of an ah hah moment which lead me to Dr. Sletten's video. My own common sense and assessment of my symptoms, medications, emotions, behaviors and physical deconditioning, lead me to believe Mayo's PRC was the best rehabilitation center for me.

If you decide that you want to apply directly to Mayo Clinic, here is a link:

- http://mayocl.in/1mtmR63

There's a lot to think about, but I assure you that dealing with the Mayo Clinic is super easy! Everyone I spoke with on the phone, met in person and worked with at PRC were amazingly helpful and accommodating. I encourage you to reach out.