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How long has PMR lasted - I'm trying to find the average

Polymyalgia Rheumatica (PMR) | Last Active: Dec 26, 2023 | Replies (136)
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@briand3960

I first came down with PMR in March 2020 after my 2nd Shingrix shot. It took me 20 months of a slow taper up and down to get off prednisone. That was in January 2022. So far I have been doing quite well but still with morning stiffness and now pain in my wrists. Hoping and praying this remission will last. As a hospital pharmacist, I tried every possible way to get off prednisone sooner but it seems you just have to listen to your body and be patient with PMR

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Replies to "I first came down with PMR in March 2020 after my 2nd Shingrix shot. It took..."
jixster | @jixster | Dec 11, 2023

I too came down with PMR about 10 days after my second Shingrix vaccination- I have to wonder if this should be a warning to those wishing to take the vaccination? I had been on prednisone since November 1 2023, I started at 50mg and am currently down to 10mg - I have some manageable morning aches/stiffness particularly in my hands - but was almost paralyzed in pain before taking prednisone. I have read that PMR can burn itself out in 5 to 6 years but my doctor tells me it’s incurable and that I will likely be on prednisone for life. But reading here - it sounds like some people can be in remission for years - I am 68 and I follow a healthy diet and keep my weight within my BMI limit - I walk everyday - so although I am healthy I am hoping to get off prednisone sometime in the nearer future. It seems everyone has their own experience with PMR - I wish there was more research into this disease and more answers.

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