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COVID vaccines and neuropathy

Neuropathy | Last Active: 3 days ago | Replies (2172)

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@africalady

3 days after receiving my first Moderna vaccine, I developed nerve problems in my calfs & feet, which I believe to be a form of Neuropathy. It started out with a burning sensation in my calf and then started tingling continuously. After a week or so, it started to go away, but has returned several times since over the past year and now has gotten worse. It feels likes it is travelling throughout my body at times, where all my nerves are tingling, which is very uncomfortable. What can I do for it? I have talked with 4 other people who have had similar reactions to the Moderna vaccine, and I'm wondering who else has had this problem & what are they doing about it? Thank you

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Replies to "3 days after receiving my first Moderna vaccine, I developed nerve problems in my calfs &..."

Welcome @africalady. You'll notice that I moved your question about neuropathy and vaccination to this existing discussion:
- COVID vaccines and neuropathy https://connect.mayoclinic.org/discussion/covid-vaccines-and-neuropathy/

I did this so you can connect with others who are dealing with neuropathy and what works for them.

I had the Moderna vaccine as well and developed similar symptoms. It took almost one year and several visits to multiple physicians and I finally have a diagnosis of CIDP
possibly from the vaccine. I am a health care provider myself and I had to be very vigilant in my own care until a diagnosis was made. What finally caught my providers attention was the results of my EMG. I am currently receiving IgG infusions and immunotherapy. I don’t think I will ever be cured but with medical therapy I can function without constant pain or muscle weakness.
My advise to you is be strong and if you are not satisfied with your diagnosis and treatment find another provider. Many times neurologist that specializes in neuromuscular disorders are familiar with complications post COVID vaccine. Be strong and stay in touch with this group.

It is very important that you see your physician and describe your symptoms and how they have progressed and become worse. Be strong and if you don’t receive treatment that helps then it is time to find an expert in neuromuscular diseases. It is difficult to live life with neuropathy that continues progress. Keep in touch.

Same here after Maderna! Also rapid heartbeat and depression! Seen all doctors and had test for everything! They told me anxiety!