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Hi, stage 4 colorectal cancer here

Colorectal Cancer | Last Active: Aug 3, 2023 | Replies (101)

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@colleenyoung

Welcome @wifemom3. I love the inspirational poem you posted. Did you write it?
Allow me to bring in some fellow stage 4 colorectal cancer warriors, like @eddiebu @pjebp @tinad @sundance6 @duckduck2020 @margreet and others. Some are recently diagnosed, others have been living with stage 4 for sometime.

Michelle, this is still all so recent for you, and reading your bio, it seems like things moved very fast. Since surgery, what treatments have you had or are you having? How are you doing?

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Replies to "Welcome @wifemom3. I love the inspirational poem you posted. Did you write it? Allow me to..."

@margreet, my story is somewhere on this site. Diagnosed stage 4 colon cancer with metastasis in liver and pancreas. Had surgery march1 2019. Colon resection, liver resection, pancreas resection (wipple manoeuvre) and gallbladder removed because of gallstones. In June I started chemo. Had 8 sessions was very sick after that. Vomiting and diarrhoea was admitted to hospital and was there for 4 weeks until my bowels were back to acceptable level and discharged. Had every 3 month a CT Scan for a year and an MRI. Everything clear so far. Have my strength back and started my 4th year still cancer free and live a normal independent life . I am now 83 and am still checked out every 6 month. Am very grateful for the care and follow up of the medical team.

Hi Colleen. I can't take credit for the poem. I did not write it.
I am currently going through chemo treatments. I will have round 7 next week. I am on Oxiplatin, Avastin, and 5FU.
Honestly, I have to take things day by day. We are trying to find a new norm. The palliative care nurse came to the house last week and had a lot of helpful information for us.
I would love to connect with others going through this.

Colleen, thank you for the email here on this site. Please feel free to let me know of I can be of help as a spouse of a cancer patient.
Yes, I have much to say and to add regards this as it will be the wish of my husband who is alive today and everyday in my memories and my prayers.
Not a day goes by that the candle of light for him is not lit, not a day goes by that I do not venture down to my local church to write his name in the list of departed souls that the priest mentions during the liturgy, and not a day goes by that I do not have my spiritual confessor do a requiem aeternam in Greek for him.
I am in Greece now where I love with trips often to USA and to meet with the oncologists at John’s Hopkins to see them and share my thoughts.
Yes, my beloved kept a writing of his journey and the messages he wrote about our Love and how we were soul mates in this journey of Life.
This journey has made me more spiritual about Life, Love and the Life to come.
My research is taking me into paths I never experienced and it is a journey I take alone now with the help of my spiritual confessor. Having been to many churches here, I found one where people wait 10-20 a day to have him do a confessional. Never have I seen a priest do this and in my neighbourhood many people speak of his spirituality.
Whenever, whatever you wish and whenever and whatever your friends on this journey wish please write. I am here to serve cancer patients with an open heart and an open soul.
We were lucky in that the doctors at John’s Hopkins have kept in touch with me and remark about our love for each other.
I try to read these letters he left for me and I am getting much encouragement to publish his wise words for others. You see he was a brave young man, a wise young man, an artistic and creative person.
With all my love
Yiannis