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Chronic Pain members - Welcome, please introduce yourself

Chronic Pain | Last Active: 18 hours ago | Replies (7067)
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@mollytracey198

PMR initiated in 2014 with all the pain endured for that many years.
( I was blessed & cursed with a remission in 2015 for a year) afterward ME/FM. I’ve tried several biologics-with nothing. Still on prednisone.
The most helpful is studying up on diet, exercise, (a past triathlete) now (yoga, meditation) parasitic infections, relationship choices, termination of my work as a soft contact lens eye painter, hence, my identity. I live in NOLA 1/2 yr & an island in Maine the other. Sounds fun but nothing like this Stress!
The medical community, in lieu of Covid, allowed mishaps in my systemic treatments from 80+ doctors, therapists, PT, OT, hypnotism, voodoo, plus 1/2 million dollars~gone!
Not much else to brag about so prayer & love goes to anybody dealing with this hideousness

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Replies to "PMR initiated in 2014 with all the pain endured for that many years. ( I was..."
anne4u | @anne4u | Apr 26, 2022

I’ve done the same ‘self care’ as you. I do meditation, try to eat right and maintain some exercise. Right now I walk when ever I’m able. Usually 2-3 times a week for at least 30 minutes. I have FM, another source of pain is degenerative disk disease. My back has been neglected for several years from doctors I’ve seen. I know Covid didn’t help any of us seeking help for pain conditions! I gave up my career, which I loved after a head on auto accident triggered fibro, with injuries. I hung in another year, until I couldn’t get out of bed. That was 19 years ago. I think the losses we experience when we start having serious health problems are like mourning a death. I was also very active prior to disability. I owned a Harley Davidson and put 20,000 on my 1st bike in 18 months. I was a buyer for Harley Davidson and traveled all over the US for my job. It was heartbreaking to give it up, and sell my bike!
I hope you are able to find the help you need. I’m currently looking for a new pain doctor. Finding the right doc is so important!

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