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Anyone here dealing with peripheral neuropathy?

Neuropathy | Last Active: 1 day ago | Replies (2915)

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@johnbishop

Welcome @ahenness, Sorry I didn't see your post sooner. I see from your post in another discussion that you mentioned you are getting about 70% relief from the pain. I know you are not alone in not being sure what to expect next. As much as I read and try to learn about neuropathy I also have some of the same feelings.

I don't have the burning pain but do have the numbness. I posted my story in another discussion here -- Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/comment/310341/

The Foundation for Peripheral Neuropathy has a lot of helpful information if you haven't already visited the site -- https://www.foundationforpn.org/living-well/lifestyle/

Have you made any lifestyle changes to see if they will help your neuropathy?

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Replies to "Welcome @ahenness, Sorry I didn't see your post sooner. I see from your post in another..."

Thanks for replying John. It took me over 6 months to get proper pain control. My short term memory is bothering me most from gaba. I'm thinking of increasing neurotryptiline to 50mg x2/day, and scaling back gaba to maybe 400 mgx4 day. Severe sunburn pain in upper arms started 6 months after initial diagnoses. I have PN in hands and feet. I'm borderline diabetic. Follow the diabetic diet. Still learning along the way.