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I detect a smell even when it isn't present
MAC & Bronchiectasis | Last Active: Nov 5 12:49pm | Replies (29)Comment receiving replies
Hi Judy. I am being treated in NO through Ochsner. Due to wanting an appt ASAP after CT results, I went to a Westbank pulmonologist that could see me sooner. Then I saw an older doctor on the Eastbank . I can give you the names on separate text. One was set on it being MAC by sight and showed me details of CT followed by a few tests; the WB doc was a little less sure and ordered a second sputum test in case first lab was contaminated. I think this is common. He seemed a little more easy to follow through better. A little confusing as both docs have different methods. I am researching for a MAC specialist now. There are a few to choose from just in case next test is also MAC positive. For 69, I am surprised about all of this as I am not very short of breath. How is your breathing going now?? It sounds like your sputum tests have been more comprehensive than mine. Like to find out who your doctor was too and wondering if you have seen a pulmonary doc. I had bloodwork done that showed my immune system was low and am receiving some therapy for that. I think the next step is an infectious disease doctor as the immune specialist said they were good if you undergo triple antibiotic therapy for MAC. Hope you are back on your feet after the pneumonia. Thanks for reaching out.
Replies to "Hi Judy. I am being treated in NO through Ochsner. Due to wanting an appt ASAP..."
Hi Judy. What an aweful start time 2022. I sent a message with Dr info that looks like you did not get. I sent it to an e-mail address. I will see how to maybe get it through another way and get back to you soon. Thanks.
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Hi Carol, Thanks for getting back to me. I do think that I now have some shortness of breath after having the pneumonia but it has not made an impact on walking, etc. just need to catch my breath occasionally but I am active no problems. I first saw an older Dr at Oschner August 2021 when the bronchiectasis was noted on the CT scan on my kidneys (all of that was fine). He ordered another CT just for my lungs and it confirmed the bronchiectasis, there is a “tree in bud” sign and other BR signs. What started all of the newest round of tests with a new & younger pulmonary Dr is the R pneumonia that was hard to resolve with at first taking Zpack and Amoxiclav for a week then a week later to the ER with PN now in both lungs! Given levaquin at that time which seems to have worked. I wish they had taken sputum samples when I had active pneumonia but I didn’t think to ask for them. What tests did you have to diagnose your immune system deficit? I think I must have something like that too since last year I had a raging UTI that took months to resolve w/o antibiotics and then this year I had a breakthrough COVID infection in early January and then the breakthrough pneumonia in mid-February through mid-March. Frustrating since I have been vaxxed to max 🙂 Can we share Dr information on this site? Otherwise, I am happy to communicate with you directly if there is a way to share personal contact info. Thanks again, Judy