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@anniekirby

I was never referred to a rheumatologist. I am now 74 and was diagnosed by my GP in Feb 2020 just prior to lockdown in March. After that most consults were online or by phone for some time. I only heard about involvement of rheumatologists through this forum! Same story for a close friend. I am not in North America but a country with good general healthcare but maybe less access to
specialists other than in major cities or private clinics beyond my financial means.
I went off Prednisone after tapering on 31st Jan 2021 and have managed minor flares since then by myself. After reviewing hours of medical info and a phone discussion with a different GP off the record as there are no exemptions of any kind here, I chose to remain unvaccinated for CV due to having PMR and another pre-existing condition. I am in excellent health, exercise every day and use supplements and OTC meds only.

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Replies to "I was never referred to a rheumatologist. I am now 74 and was diagnosed by my..."

It took 5 months to get to see a Neurologist (although I should be seeing a Rheumatologist). This is on my GP as he kept telling me the pain was "old age". After N. diagnosed PMR, went on steroids (Jan. 2022). GP has now retired. No family doctor. Finally met the R. in person last week. Follow-up bloodwork results early next week. Trying to wean off of the Prednisone. In Halifax, getting into the Rheumatology Clinic is not until June or July 2022 and that's on an urgent basis. My PMR started with my first vax, escalated after the second vax and progressed after August 2021 (second vax 10 days earlier). I am in agreement with you not getting the vaccines or a booster. It seems like you're doing very well with the protocol you are on. Let your body do the talking. Cheers!