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I detect a smell even when it isn't present

MAC & Bronchiectasis | Last Active: Apr 26, 2022 | Replies (14)

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@lolaf

Hi Carol, I am 68 and live in New Orleans too and have had similar symptoms off/on with sense of smell for past 10 years. I was diagnosed with bronchiectasis last August which I didn’t even know I had, a CT scan of my kidneys showed it initially. A CT was done recently as I contracted a difficult to treat double pneumonia while visiting Costa Rica in February. Right now I am awaiting results of 3 sputum cultures that were done over 3 days for possible NTM. Are you happy with the treatment you are receiving in New Orleans? If so, may I ask who your pulmonary physician is? Hope you are able to find a way to relieve the pain in your eye so you can comfortably do you clearing exercises 🙂 Judy F

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Replies to "Hi Carol, I am 68 and live in New Orleans too and have had similar symptoms..."

Hi Judy. I am being treated in NO through Ochsner. Due to wanting an appt ASAP after CT results, I went to a Westbank pulmonologist that could see me sooner. Then I saw an older doctor on the Eastbank . I can give you the names on separate text. One was set on it being MAC by sight and showed me details of CT followed by a few tests; the WB doc was a little less sure and ordered a second sputum test in case first lab was contaminated. I think this is common. He seemed a little more easy to follow through better. A little confusing as both docs have different methods. I am researching for a MAC specialist now. There are a few to choose from just in case next test is also MAC positive. For 69, I am surprised about all of this as I am not very short of breath. How is your breathing going now?? It sounds like your sputum tests have been more comprehensive than mine. Like to find out who your doctor was too and wondering if you have seen a pulmonary doc. I had bloodwork done that showed my immune system was low and am receiving some therapy for that. I think the next step is an infectious disease doctor as the immune specialist said they were good if you undergo triple antibiotic therapy for MAC. Hope you are back on your feet after the pneumonia. Thanks for reaching out.