Hi @jfannarbor, 6 years ago seems like a long time to me since your last meetup with a rheumatologist. You mentioned you are doing fine and are on 2.5 mg prednisone daily that seems to help but you also said you are still in constant pain and very stiff? My starting dose with prednisone was 20 mg which I took in the mornings and within a very short time all my pain and aches were gone for the day. Then when I started tapering down after being on the dosage and my pain and stiffness was under control, the rheumatologist had me keep a daily pain log with pain rated at 1 to 10 with 10 being the worst, along with the dosage of prednisone for that day. This was what I used when tapering down to the next lower level and what my rheumy recommended.

It sounds like your doctor might not be listening to you. Are you able to get a second opinion or see a rheumatologist again?

Hi @jfannarbor, on the proper dosage of prednisone, your symptoms should disappear. If your doctors really think you're doing well because you're not using a wheelchair, that's pretty sad. I agree with @johnbishop. It's probably time to consult with a rheumatologist. You are entitled to a life without pain. We're fortunate that prednisone can make this disease, and its companion disorder, Giant Cell Arteritis, manageable. I wish you the best.