← Return to Raynaud's Syndrome: Anyone want to talk about Raynaud’s?

Discussion

Raynaud's Syndrome: Anyone want to talk about Raynaud’s?

Autoimmune Diseases | Last Active: 2 days ago | Replies (271)
Comment receiving replies
@marilynredder2367

Yes that’s the key keep moving. I cannot begin to tell you how many other autoimmune diseases I live with. I just know I’m not ready to leave this life at the moment. Every day is a new beginning and if you get a few good days that’s a good thing.

Jump to this post

Replies to "Yes that’s the key keep moving. I cannot begin to tell you how many other autoimmune..."
jilliemo12345 | @jilliemo12345 | Apr 24, 2022

I am doing well for 7 years on biologicals. I’m not complaining as there are so many others who do not get any relief from the pain and limitations.
When the flares happen, well it’s my turn.
The hardest symptoms to explain are looking ok, but in serious pain and what I call “hitting the wall”, this is when in a few moments I must lay down immediately. After a nap if 20 minutes to 2 hours I’m back to my normal..
My husband can just look at me and say “it’s the wall huh?”.
Break time! I love that he understands and supports me.
Support is primal to feel you best and being encouraged.
Find that person family or friend or a support group, don’t do this alone.
Best to all.❤️

VIEW AND REPLY