From what I’ve read there’s a lot of overlap in symptoms reported for long Covid and adverse reactions from these vaccines. My hope the same can be said for treatments…

My story: I started having acute onset peripheral neuropathy in my left foot and lower leg right after Moderna shot #2, but not fast enough for Guillain-Barre. Within two months it moved to my hands and my right foot. Then came severe orthostatic hypotension. I had ZERO neuropathy symptoms of any sort before my second shot. My left shin had burning and buzzing starting two days after…then I lost hair along my lower legs within a week that my left foot went numb…

Sadly most of my issues have only been distal so I can’t classify as CIDP either. I am pre-diabetic w/ a constant 5.7 A1c as of 2019 (ironically right before Covid hit us), and yet many of these symptoms also overlap with *long-term uncontrolled* diabetes.

I’ve seen so many doctors and had so many blood tests, scans and EMGs in the last year… all of them except for my skin biopsy came back “unremarkable/unrevealing.” So far all but just one doctor (my second/current neurologist) I’ve seen just dismisses this as “diabetes.” When I ask if this onset and timeliness with Moderna shot #2 is also characteristic with diabetes, they shrug and say “no.”

My feet were getting worse until I started have tinnitus in my left ear. I took a Medrol dosepak (methylprednisolone) and my foot drop and severe numbness dissipated somewhat. No joy on my ear, but it worked a bit for my feet. Sadly after taking the steroid I got a cotton wool spot in my left eye. Then my leg and forearm muscles began atrophying FAST…

I’m now have tinnitus in my right ear too and…sigh.. severe erectile dysfunction. I’m also noticing cyanosis in my feet when sitting during the day(possible thrombosis?)

My only doctor who believes me is thankfully my neurologist. He had originally suggested that the vaccine inflammatory reaction exacerbates latent existing inflammatory conditions. He had also suggested pulse steroid therapy back in Feb, but wanted me to wait until May so see if things would wane. They haven’t…

All of these symptoms…neuro, vascular, seems related to blood clotting and occlusive issues resulting from defective immune responses. Corticosteroids, plasmapheresis and IVIg treat autoimmune conditions, yet on all these forums online…none of the three are mentioned much.

From from what I’ve read, corticosteroids have had more limited success compared to IVIg and (to some extent) plasmapheresis in treating long Covid neuro conditions.

My neurologist readily admits that the onset of all this crap is too fast and corresponds too much to my vaccine administration. He had stated multiple other patients have come to him (healthier than myself) with similar symptoms.

I have had weekly Covid PCR tests required from my daughter’s school for over a year. Each week…”Negative.”

A year out from this “safe and effective” vaccine and I have been left with minimal sensation in my fingers and feet, cold/blue/numb feet during the day and warm/red/burning feet in the evening, ringing in my ears, dark spots in my vision….and I can’t be intimate with my wife anymore. None of this was present before these jabs.

I have spent a year cursing the days I ever exposed my left arm for these injections. Now I am laser focused on treatment. Has anyone received steroid, IVIg and/or plasmapheresis/apheresis treatment on here? Has it proved helpful?

Thanks in advance and I hope this all gets better for us soon. Without medical/media acknowledgement I fear we will never get the care we deserve..

P.S.: Sorry for the TL;DR, but I’ve got no where else I can vent this. It has been very frustrating, exhausting and debilitating.