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Central Nervous System Vasculitis and dealing with brain fog
Autoimmune Diseases | Last Active: Dec 14, 2023 | Replies (13)Comment receiving replies
Hi Colleen. I had primary CNS vasculitis 11 years ago that attacked my brain. I was on chemo for approx 9-10 months. Fortunately I survived yet found myself struggling for words afterwords. I tried going back to work and did work for 7 years after the CNSV. Started out fulltime then to part time then gave up. I had difficulty focusing on tasks, unable to make decisions and carry through, brain fog and cognitive problems. I muddled through life and knew I was not the person cognitively that I used to be before CNSV. Then in Oct 2021 I was hospitalized with Covid. I was fortunate to leave the hospital alive. My daughters were very happy. Now I brain fog, chronic fatigue, insomnia, irritable moods, headaches, etc. Absolutely no motivation to exercise and I was previously a “gym rat.” After I stopped working I turned to exercise to feel better. Now nothing. Somewhere along the way since Covid I lost my motivation for life. I am not suicidal, It takes every once of energy I have to get thru a day.
Hope I answered your question.
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Hi @babsg1 !
I’m another foggy one.
Reading your post made something clear to me about myself that I have not been able to put a name on yet. Motivation.
I have the same lack of motivation to exercise as you do and I used to be very active. Also, losing motivation for life. I’m not suicidal either, maybe a bit depressed, but mostly sad.
I have the feeling that my life is over- I’m 77.
Logically, I know I’m totally wrong. I have had therapy for a long time- I don’t think it helps anymore though.
My brain fog from fibromyalgia started when I was young -stress from work. Hereditary too.
The fog thickened after chemo for breast cancer 30 years ago.
13 years ago I was diagnosed with autoimmune colitis.
It waxed and waned for years- I didn’t function well for years.
I finally had immunosuppressive treatment 5 years ago, clearing all colitis symptoms.
I still had mental and physical fatigue, but tried to get back to normal activities.
Something strange had happened- I could not remember how to hit a tennis ball! I had played for years. I finally got the hang of it- but I don’t have the same edge.
Also, I had difficulty parking the car straight in a parking spot and judging how far in I was.
I’m still not “ normal “, I still have some inflammation in my GI system. Fatigue follows.
Sending you an energy hug!