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Do other long haulers suffer with brain changes? Seen any improvement?

Post-COVID Recovery & COVID-19 | Last Active: May 15, 2023 | Replies (173)
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@jar

I'm new on this site! To read some of these posts makes me feel like when will this end! Had covid the end of May 2021 that was the second time. Terrific headaches, muscle and hair loss, memory loss, lack of sleep, dizziness and focusing on things is what I'm struggling with. The Internal doctor that I was sent to after having covid told me that I was a long hauler from covid! Seeing an ENT, had CT scan and MRI on Monday. Just wanted to make sure there isn't something else going on. Praying for everyone that is going through this!

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pkpeterson | @pkpeterson | Apr 21, 2022

I had Covid December 2021. The horrible headaches, horrible tinnitus, hair loss, brain fog and chills are more than I can take. I’ve had MRIs and a CT, and nothing. It feels so hopeless. 😞

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Colleen Young, Connect Director | @colleenyoung | Apr 23, 2022

@jar @pkpeterson @jd44204, I know long COVID can leave you feeling hopeless. Recovery is so slow. But there is hope and understanding.

I encourage you to follow this blog written by Mayo Clinic Long COVID experts:
- Post-COVID Recovery https://connect.mayoclinic.org/blog/post-covid-recovery/

Drs Van, Ganesh and others share observations they see at Mayo Clinic's Post COVID Care Clinics and offer tips. For example, see these posts:
- Early Care Tips for COVID Longhaulers https://connect.mayoclinic.org/blog/post-covid-recovery/newsfeed-post/early-care-tips-for-covid-longhaulers/
- Physical Therapy and Occupational Therapy Guidance for Post-COVID Syndrome (PCS) https://connect.mayoclinic.org/blog/post-covid-recovery/newsfeed-post/physical-therapy-and-occupational-therapy-guidance-for-post-covid-syndrome-pcs/
- Cognitive Changes and Post-COVID https://connect.mayoclinic.org/blog/post-covid-recovery/newsfeed-post/cognitive-changes-and-post-covid/

What do you find helps you compensate and manage the cognitive changes?

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