Good afternoon @danpinc2022 First, let me welcome you to Connect. This is a forum where sharing is our form of therapy. We all share with each other and by doing that we help others learn about their issues and they help you. It seems like Nov. 2021 was not very long ago. I am sad about your post-op condition And I can truly empathize with the frustrations you are experiencing. Now don't run away, because I have things to share with you. I have had SFN small fiber neuropathy for about five years. And the reason........I have had 14 orthopedic surgeries including three spinal. My last one was cervical and was meant to help the neuropathy in my arms, wrists, and hands. It worked for a while and then the pain, numbness, and tingles came roaring back. So I understand what you mean by "very little progress."
Would you be able to share a little more about rehab? What kind of therapy did you have there? Have your clinicians given you any diagnostic findings? And finally, did you have a diagnostic skin biopsy?
There are quite a few treatments that may help you manage your neuropathy symptoms. There really is no cure as you may already know. Before we start with the options, I want to introduce you to two of my colleagues. @jenniferhunter and @johnbishop. Jennifer has been a Mayo spine patient and has a personal background that supports her extensive knowledge. John can help you with research for current helpful treatments.
And I will be here for you also. Looking forward to the photo.
May you be free of suffering and the causes of suffering.
Chris
thank you so much for the prompt reply. my rehab consist of walking in a walker, standing as long as I can without holding on, with my eyes closed and open and many exercises to strenghten my legs. I have not had any skin biopsy. I just started LED light treatments ( own my own ) . I will follow up with John and jennifer.