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Living with Neuropathy - Welcome to the group
Neuropathy | Last Active: 12 hours ago | Replies (6014)Comment receiving replies
My name is Dan Powell. I live in the great state of North Carolina. I have had post op neuropathy since spinal surgery Nov. 12 2021, I was in rehab for 63 days, I have been home for almost 3 months now. I am continuing theopathy with home health care. I have made very little progress. I am in a wheel chair. I have it in both legs and feet. I will ad a photo later. looking forward to hearing from others. Dan Powell
Replies to "My name is Dan Powell. I live in the great state of North Carolina. I have..."
Hi @danpinc2022, I would like to add my welcome to Connect along with @artscaping and other members. I can't begin to imagine how difficult spine surgery recovery and rehabilitation can be. I would think 3 months is still early in the recovery process but hopefully @jenniferhunter can share her thoughts on the recovery and rehab process. There is an older discussion from 2016 that has posts from 2021 that you might find helpful on spine surgery recovery -- Spinal Surgery: What should I expect?: https://connect.mayoclinic.org/discussion/what-to-expect/
You also might find the following discussion and websites helpful for learning more about neuropathy and available treatments.
-- Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/
-- Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/
-- Neuropathy Commons: https://neuropathycommons.org/
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Good afternoon @danpinc2022 First, let me welcome you to Connect. This is a forum where sharing is our form of therapy. We all share with each other and by doing that we help others learn about their issues and they help you. It seems like Nov. 2021 was not very long ago. I am sad about your post-op condition And I can truly empathize with the frustrations you are experiencing. Now don't run away, because I have things to share with you. I have had SFN small fiber neuropathy for about five years. And the reason........I have had 14 orthopedic surgeries including three spinal. My last one was cervical and was meant to help the neuropathy in my arms, wrists, and hands. It worked for a while and then the pain, numbness, and tingles came roaring back. So I understand what you mean by "very little progress."
Would you be able to share a little more about rehab? What kind of therapy did you have there? Have your clinicians given you any diagnostic findings? And finally, did you have a diagnostic skin biopsy?
There are quite a few treatments that may help you manage your neuropathy symptoms. There really is no cure as you may already know. Before we start with the options, I want to introduce you to two of my colleagues. @jenniferhunter and @johnbishop. Jennifer has been a Mayo spine patient and has a personal background that supports her extensive knowledge. John can help you with research for current helpful treatments.
And I will be here for you also. Looking forward to the photo.
May you be free of suffering and the causes of suffering.
Chris