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Lower limb lymphedema

Cancer | Last Active: Oct 24, 2021 | Replies (19)

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@okami0ninja

Hello. I am 17 years old and have had Lymphedema since i was 10 months old. I've been living with it my whole life and it is nice to know that I am not alone. It's hard to talk to my family or friends about it because no one can relate. Even if it is not much, it is nice to know you are not alone. I have never used a compression machine. I excercise daily and am on a 1000 calorie diet. I am constantly watching my weight and always have been. I wish you the best with your Lymphedema.

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Replies to "Hello. I am 17 years old and have had Lymphedema since i was 10 months old...."

Hello 🙂 so nice to read your post! Yes there is something "wonderful" about knowing there are other people out here that do understand. So...you have had this your whole life...sounds like you are being very responsible and doing what is best for this condition, good for you!!! Reading your post has brightened my day, you are 17 and have your whole life ahead of you. By doing what we are suppose to do, we too can experience "quality of life" One Day At A Time right? I am sending you hugs and smiles today okamOninja I hope you are having a wonderful day!!!

Thank you! I hope your day is even more wonderful!

Bless Your Heart!!!!!! Thank you for replying! I totally get it about knowing you are not alone! I have just recently changed my entire eating habits and it seems to be helping!!! ABSOULTLY NO SODA and as little processed foods as possible, in one week i have lost weight(water) and feel sooo much better, i have also cut out bread completely and limited amts of taters! I drink mainly evian and have 1 cxup of green tea w/ stevia for my caffeine fix! lol Iwas drinking a 8pk of small bottles of diet coke daily! my leg is feeling stronger and alot of the discomfort is subsiding! I don't refer to this as dieting it is a lifestyle change! My hubby & i are both diabetic, he is on meds i am not, this is another reason for this change hopefully he will be able to wean off his meds in 3 months! There is a hormone called leptin which i believe is responc. for my not losing weight, i don't know if weight is an issue for u ?? you might what research about it or ask yoyour dr. when i was on a 1300 cal. diet i gained! soooo frustrating! Good Luck!!!! I'll be praying for you!

God bless you You are so brave thanks for sharing your experience Just know you’re loved and supported