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@pwgrimes

Celiac is a sneaky autoimmune disease. When your small intestine has its digestive filament ruined you do not digest food and your entire body is in a state of malnutrition. Every part of your body can be effected with no growth potential. It is a very serious disease and they are just now teaching doctors about it. It took me 8 years of pain and body dysfunction to finally have a smart Dr give me the test. The 6 gastroenterologists I have seen only did colonoscopies and all said your ok. None every mentioned Celiac. It is genetic and effects the ability of the entire body to grow new cells and function. Go to the Celiac Foundation web or the Mayo Clinic Celiac Clinic to learn the facts.

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Replies to "Celiac is a sneaky autoimmune disease. When your small intestine has its digestive filament ruined you..."

Hello @pwgrimes,

I found your post to be very informative. Could you share with me the type of test that diagnosed Celiac Disease? Was it a blood test or an upper endoscopy?

I had the double blood test. Also I have the gene. You have to have that for the autoimmune disease. The allergy just gives you a temporary bowel problem. When I look back over my 72 years before the test I see all the symptoms . I always wondered why I had sickly times. I started out with constitution as a very skinny slow growing child. I would be exhausted after any time of exertion. I even had the enamel wear off my teeth. Had to have all crowns at 40. The first major symptom I noticed was the huge bloating like I was pregnant. As a adult I now have osteoporosis, even though I lifted substantial weights for 40 years and no one in my family has it. I have arteriosclerosis and had a 4 inch shunt in my thigh. Then there is peripheral neuropathy as well. I have had pancreatitis, all the doctors said I must be a drinker. And my gallbladder was nothing but a stone when removed. I have extreme Gerd. My digestive system does not work well and my bowel and rectal area do not coordinate. All of these are the result of living with malnutrition and not digesting food for my body and parts to grow and function right. I am one of the 30% who do not get complete relief from Going GF. I do not think I need the small intestine endoscopy to prove I have it. The Celiac leaves patchy areas of the intestine injured and a doctor needs to know the specific spots to get the samples. Since no Dr. I have been to in 11 years knows about the disease I don’t trust their testing. I am now having a very bad and painful time with rectal pain, probably caused by straining to alleviate constipation. I am in bed in pain waiting for an appointment with Colorectal Doctor who knows about anal fissures. They have made me wait 10 weeks and I can’t take pain med. The ER doctor knew nothing about Celiac and could not understand the problems I have. I waited 10 hours for nothing.
If I did not mention the Celiac Foundation web site they know the latest research.