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Help with Chronic Fatigue Syndrome

Just Want to Talk | Last Active: Jul 16 4:21pm | Replies (62)
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@lanalc

I was 48 when a cardiologist(!!) in very small town finally ordered right labs…
Acute infectious mono ( EBV ). By that time (a year or more) I had Hashimotos Thyroiditis. Soon after, thyroid surgery.
The brain fog, deep aches, incredible fatigue continues. For about 8 years I
have been on hydrocodone 10/325. Tried many other things. No help. Regular exercise? Not much!! Three months ago started Stretch Zone ( 1/2 hr twice a week. Start very slowly or pain is worse.
I’ve been collecting info from many sources since this started. Something not working right with mitochondria,ATP MAY be a culprit PERHAPS caused by EBV. So until we know more I will take hydro and rest and sleep a lot.
That’s the very basics of my journey with this. Oh! Depression came along. Transcranial Magnetic Stimulation was a great treatment. But, no cure.
I just found this site. Glad I did 💙

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Replies to "I was 48 when a cardiologist(!!) in very small town finally ordered right labs… Acute infectious..."
Becky, Volunteer Mentor | @becsbuddy | Apr 20, 2022

@lanalc I’m glad you found this site also! It certainly sounds like you’ve been having a rough time. I’m hoping we can help. Have you seen a rheumatologist? They are specialists in putting together mysterious symptoms. You can contact a major medical center or university hospital near you. Find out if you can be seen. When i was first diagnosed with my autoimmune disease, none of the doctors locally knew what it was. I then went to a university hospital and they knew right away what i had and began treatment. 8 years is too long to live a half-life!
Do you think you could contact one of the hospitals?

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