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@rwinney

@daliea I know how frustrating that must be for you. I had a situation that was similar. Have you had a skin biopsy to rule out small fiber neuropathy? Do you feel there is an unknown diagnosis yet to be found?

Unfortunately, moving beyond the acute phase and into having chronic symptoms means having to best learn how to live with what you have so you can regain control and quality of life. Granted it may be a newly defined control and quality of life.

Have you had the chance to watch the video I attached earlier?

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Replies to "@daliea I know how frustrating that must be for you. I had a situation that was..."

Yes I did have a skin biopsy it came back within normal limits but not conclusive.
I did watch the video and I have to say that it was not encouraging. I was diagnosed with fibromyalgia about thirty five years ago it didn’t stop me from doing anything.We used to go hiking ,gardening.We had horses ,a donkey raised all our meat raised five children and did therapeutic foster care for seven years after our children were grown. I also refinish antique furniture and pretty much did what needed to be done.My husband could rely on me,now I depend on him.
Yes I am having a hard time adjusting I have never been sedentary. I know that even with a diagnosis I probably won’t have much for pain relief,that’s what I have to accept.

I'm currently trying SWT (Sound Wave Therapy - not sure yet about results but very positive info in Clinical Studied... I'm looking into Red/Infa-red light therapy as well. Supports cells and energizes you Mitochondria?? I went to a therapist specializing in Adhesions - It help a lot. Maybe worth pursuing these option. Good luck. All the best, J