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Uterine clear-cell carcinoma, chemo treatment unknowns
Gynecologic Cancers | Last Active: Oct 5 12:40pm | Replies (86)Comment receiving replies
I am still trying to do this second opinion. I do not know how to navigate this process. My primary will write me a referral, however to whom? I need someone to show me the step-by-step process to get it done. I have placed a call to her nurse, and I am still waiting. Since I told the cancer team that I wanted to get a second opinion, I have not heard a thing from them. Can anyone give me a name of a doctor(s) at the Mayo clinic that I can start researching? Any help at all that you can give me will surely be appreciated .thanks,
Lou Ann Lou277
Replies to "I am still trying to do this second opinion. I do not know how to navigate..."
Hi Lou, I’m catching up on your cancer journey and also live in Wisconsin. Are you in central, southern, or northern Wisconsin? There are a number of options for great cancer care in our state. If you can give me the general area, I’ll try to direct you to a reputable oncology clinic. Are you currently on your own insurance through work or Medicare with a supplemental provider? If so, you’re able to chose where you’d like to be.
I’m so sorry to hear about this lack of response from your oncologist and very little information as follow up. It’s a very scary time to be left floundering.
Regarding your chemo, it really is important to stay on a course of this even if you’re trying to secure a second opinion. Even though you had surgery and feel the cancer is gone, your team may be doing some ‘clean up’ chemo to make sure any cells that may have been non-detect are caught. When you had your breathing reaction, where you home or at an infusion center? There are medications which can given to you preemptively to help you avoid a repeat episode.
You mentioned not having a support system. We all need that when we’re going through a critical time in our lives. As you can see you have lots of us in Connect who know what you’re going through as most of us have had some personal impact with cancer or other medical story. For more of a direct link to cancer questions and assistance, The American Cancer Society has a number of wonderful services available for cancer patients such as a Cancer Hotline to call, they provide rides to and from treatment, etc. https://www.cancer.org/treatment/support-programs-and-services.html
@colleenyoung has provided the link to contact Mayo either directly for yourself or a link for your provider to give a referral. Have you had an opportunity to follow through yet?
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@lou277, Mayo Clinic makes submitting a referral easy. You don't need a specific doctor's name. At Mayo Clinic, the clinicians work as a team.
You can self refer by filling out a form online or calling Mayo Clinic appointments directly. It is all explained step by step here: http://mayocl.in/1mtmR63
A physician referral can help. It would be easier for you, and sometimes it helps the process to when doctors can speak with doctors and give a full picture. Give your primary care physician this weblink about how to refer a patient https://www.mayoclinic.org/medical-professionals/provider-relations/refer-patient
Keep asking questions, Lou Ann. We're here to help.