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Central Nervous System Vasculitis and dealing with brain fog

Autoimmune Diseases | Last Active: Dec 14, 2023 | Replies (13)
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@colleenyoung

Hi @babsg1, welcome. I'm inviting @leezer and @vcornette1 and @SusanEllen66 into this discussion to share their experiences with CNS vasculitis or vasculitis and brain fog. @becsbuddy @marye2 and @astaingegerdm also know first hand what it is like to deal with brain fog related to an autoimmune condition.

Barb, I was reading your other posts and I see that you may also be dealing with long COVID. Were you diagnosed with CNS vasculitis before COVID or is this something that happened due to COVID? Not that it really matters which came first, since recovery for both often involves dealing with cognitive issues, memory and brain fog. Do you know if you have primary or secondary CNS vasculitis?

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Replies to "Hi @babsg1, welcome. I'm inviting @leezer and @vcornette1 and @SusanEllen66 into this discussion to share their..."
SusanEllen66 | @SusanEllen66 | Apr 20, 2022

Thanks, but I don’t have CNS Vasculitis. My Polyarthritis Nodosa has caused me to have peripheral neuropathy.
I have brain fog from fibromyalgia.

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babsg1 | @babsg1 | Apr 21, 2022

Hi Colleen. I had primary CNS vasculitis 11 years ago that attacked my brain. I was on chemo for approx 9-10 months. Fortunately I survived yet found myself struggling for words afterwords. I tried going back to work and did work for 7 years after the CNSV. Started out fulltime then to part time then gave up. I had difficulty focusing on tasks, unable to make decisions and carry through, brain fog and cognitive problems. I muddled through life and knew I was not the person cognitively that I used to be before CNSV. Then in Oct 2021 I was hospitalized with Covid. I was fortunate to leave the hospital alive. My daughters were very happy. Now I brain fog, chronic fatigue, insomnia, irritable moods, headaches, etc. Absolutely no motivation to exercise and I was previously a “gym rat.” After I stopped working I turned to exercise to feel better. Now nothing. Somewhere along the way since Covid I lost my motivation for life. I am not suicidal, It takes every once of energy I have to get thru a day.
Hope I answered your question.

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