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Trigeminal neuralgia worse 10 years after MVD now tentorial meningioma
Brain & Nervous System | Last Active: Feb 11 3:24pm | Replies (10)Comment receiving replies
What kind of attack are you having three times a day? Of trigeminal neuralgia type pain?
It sounds possible that the meningioma is causing some of those facial symptoms. It seems that surgery and possibly radiation (depending) might bring relief. I am sorry there is no medical resource nearby for you and hope you can find a way to get to help.
Is less invasive heart surgery not possible? https://pubmed.ncbi.nlm.nih.gov/28843324/ Is there a reason you are having open-heart surgery?
I have chostocondritis from time to time. Yours sounds a lot worse! I also have pain and numbness on the left side of my face. I have had imaging: they suspected an acoustic neuroma, then suggested TN. I have not yet agreed to contrast with MRI or CT. Mine is not agonizing like yours.
I can understand it is hard to keep going with so many problems and obstacles and pain. I hope you can find a way to treatment, the least invasive treatments possible, and continue to teach your grandchildren and others how to live well and kindly.
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@windyshores
My ENT suspected an acoustic neuroma because of much decreased in hearing within one year. It was a neuroma on my trigeminal nerve. I already had TN for about 20 years. I had the MVD surgery about 17 years ago. I am planning the removal and the doctor will also look to see if there are offending blood vessels. After the MVD, I didn’t get complete relief but was happy with some relief. It has been up and down but I think the surgery is the right way to go. I have had three MRIs. The initial MRI, then the second showed about double the growth, then the last one was stable. My pain was increasing for about a year and a half before it was found. This has been about a three year progression of pain. I see the neurosurgeon in two weeks. He suggested surgery about eight months ago. He is the same surgeon I used for the MVD. I hope by now you have made the right decision for you.