Hey, if I couldn’t laugh about some of this, I would be truly stark raving mad. Here is another thing I do to give myself some relief. I call it freezing my ass-ets. I found these large gel packs on Amazon. You can freeze them or microwave them according to your needs. I freeze mine, then wrap a towel around them and get them situated in the Cauda Equina area and sit on them until defrosted. I can feel the pain getting under control almost immediately. The Cauda Equina area is where all the nerve branch out into your legs and lower body areas so it makes sense to numb it. I rotate the two large pads so I always have one in the freezer. I feel like I have a lump shaped like a small baker potato 🥔 in my pants. It can be very painful. Icing it really helps. I have smaller gel packs that I can place on my legs as well. If you don’t have gel packs, use ice but be sure to double bag it. I have two of those ice bags and they both leak so if they are not doube bagged I end up with a wet butt and a wet bed. (I live in my bed.). As for a Gabapetin jones, I experienced some heebie jeebies towards the end of my being without. In addition to the outrageous nerve pain, there was some things going on that I have never experienced before. I Googled Gabapetin to see if it had withdrawals when abruptly stopped and yes it does. When I was dicking around with my doc’s replacement, I felt like a drug addict. I was begging for just enough to get me through the weekend. I don’t know where you live, but here in Washington state we have several associations that are geared to helping people with spinal cord injuries. There are lots of women who have fur coats just hanging in their closets that they are afraid to wear or have just put them in the closet area where things they don’t wear due to political correctness or outdated fashion that they just like to look at or think they might fit into some day. Try asking your churches, lodges, charitable organizations. Give somebody a tax write off. It’s for a good cause.
I don’t know why the medical profession keeps all these secrets to themselves. I feel like either I am the first person they have ever encountered with the symptoms I am having or I am a hypochondriac. For 3 1/2 years I complained to every medical professional I saw that I couldn’t urinate. I also had these episodes of waking up completely paralyzed. When I went to Urgent Care for the umpthteen time and said I couldn’t urinate, the doc said “You mean you can’t pee?” “ Yes, I can’t pee! I am sorry. I have been using the wrong medical terminology all this time. I can’t pee.” As far as the paralysis thing goes, everyone said how frightening that must be and so on. Nobody volunteered any information about it. I googled the potato thing and pee problem. It pointed to spinal chord injuries and possible Cauda Equina Syndrome. I had yet to get a MRI of my lower back. I googled “Why do I wake up paralyzed?” and was directed to youtube videos on Sleep Paralysis which happens when you wake up before your brain has done its maintenance and the things it shuts down haven’t been plugged in yet. I changed insurance this year so I could use the UW medical center. With my HMO, I was denied surgery and told to prepare myself for paralysis. When I shared my ground breaking findings from my research, it was “Oh, yeah. Sleep Paralysis. Happens all the time.” As far as the Cauda Equina Syndrome goes, I am seeing the head of neurology on April 17th. I think my HMO wouldn’t look in to it as that condition calls for urgent emergency surgery and they were covering their ass-ets as if I do have CES, they are liable for a big law suit. With the Sleep Paralysis, when I asked why they weren’t forthcoming with their knowledge, I got a shoulder shrug which was better then the collective eye rolls when I first told of my experience.
Well, in addition to all of the above, I have bilateral carpal syndrome due to shattered stuff in my cervical spine area and holding up my I paid too much for this Pad and typing is hurting me. Stay brave. I heard that chronic pain suffers are going to be able to get those meds that were taken away when Jeff Sessions decided that nobody should have access to opioids. Stay strong. ❤️💐