I am losing hope, drs have no answers for me…

Hi Jeanne. I'm not selling anything but I do have a blog and will have an article out this Saturday on my journey with functional medicine where I'll discuss what functional doctors do and how they may differ from traditional doctors. My blog is:
jazzyoldbroad.com jj

I am a medical professional, and what you describe as functional doctor is a mixture of quackery and osteopath. You can have this way better if you can become a patient at the Mayo system, because when you are with them, they look at any aspect of your health, including nutrition!. I see different endocrinologists and gynecologists at the Mayo because either one is specialized on a very specific section of their medical knowledge.

Hello,

Please dont lose hope! I had some similar symptoms you describe. You need to find the right doctors. You sound like me a few years sgo, I had lost hope snd reduced quslity of life until I was visiting relatives in Michigan and got very sick while there and was sent to a Beaumont Allergy Clínic in R.O. who referred me on to went the not for Profit University of Michigan. I was then sent on to 3 More specialists and got a diagnosis very quickly. After seeing múltiple for profit doctors
the not for profit university bases medical care changes my life for better. I was put on a simple over the counter régimen that changes my quality of life immedistely.
Is inexpebsive and liftwd an eleohant off me the chronic fatigue ais much better.. Noww i can function and not stay in isolated at home Low quality of life condition because of múltiple chemical sensitivities. I Aldo had 2 doctor's show me am allergy mapa and told me yo move south which changes my entire life from being hedridden October to May from E.B.V. as they figures iutbmy trigger was the cold, damp winters. I thrivr in the heat instead. So I took my life back! After being so well treated there in Michigan, I was sent yoban allergist immunologist. He recignized what I had and instead of extensiva testing he said lets try a treatment plan and see how you do. It's changed my quality of life. I returned home I saught out another
local university for follow up care at Not for Profit Center to help figure out the other problems I was having like enlarged and fistended gut. I then was went to the liver and hepabillusry specislust , was actually viven another diagnosis as am enlarged liver which is reversible through dieta .mediterránean planta bases not vegan diet.. I was golf it was from tylenol used yo control my R.B.V. in winter months severe fevers, now instead i use ice instead of tylenol. They gradually got me off all the asthma and allergy steroids docs put me on. I found for Profit docs put me on meds which causes horrible side effects Made me sicker then the symptoms for taking them. Steroids also gave me cushings syndrome, which add unusual weight to your upper body. i got off all steroids except docs say I may need for emergencies and took my life back and my body slowly returning. Energy returning, and can exercise now and gone down 3 sizes just by rating half my plate Cooked Green mixed veggies snd other half cut in half lean protein & starchy Veggie. Use smaller plate for portion control...which helps tremendously. The noderste exercise helps w fatigue snd brain fog. Hubby got me an auto Matic peddler u plug in can sit and peddle. It really helps a Lot with Braun fog and fatigue . Fighting the inactivity all these health issues causes really make a diference, ser small goals a few times a week then add More days put on some upbeat música to peddle to and you will feel better....

I just got the the fodmap the app really helps me make better choices to feel better too. Which helpee me choise the better veggies for med. diet, the good Is do good..my hubby found a Cuisinart griddler Is a gane chsnger grillimg veggies tastes way better and do Easy..I found i had to cut out dairy & corn and sugart drinks swapped out for water and lemon.. Aldo gut doc told me low fat Activia yogurt kills the accumulation of bad bacteria in gut along w certain fermented foods
& stromg probiótics suplementos try Swanson.com had Hugh quslity but inexpensive choices which has eased my stomachs distensión.
which i realized by talking to pharmcist and reading insert Pagés of side effects of meds I was prescribed. Pharmacist helped me Sort out symotoms and side effects too.
Because if these positive diagnosis at not for Profit university teaching hospital medical centres I foundca way better quality if care. Maybe it would help you too. They so Easy to real with, and very caring take More Time as they patient driven not Profit driven. As long as I stay in warm climate my E.B.V stsys in remissión. When cold weather I avoid travel back tisee relatives up North the cole or E.B.V. triggers on on w a vengeance. Docs say my En.B.V. Is could mediantes.. also found done supplements help during cooler remos to keep e.b.v. at Bay one works for me Is lysine. (There are others, you can resesrch, might help.) We went for Vk to try out first which southern ststes Warmer climate was better for me before moving. We got an RV and traveled diferentes Places in winter to see where I felt best then relicated. Was a game chsngercand I took my life back. So dont give up, answered areboug there but it really matters whose advice you week. Not for Profit instead of for Profit deriven carecwas another game changer for me also. The diference
Is correct diagnosis and a team of
Qualified health profesionals willing to work together to help me Sort out my various problems one by one I Also ended up w gall stones which was why i had constant pain you describe in back and gut etc. Now I have a manageable health condition, and they follow up by telehealth which is do convenient saving gas & hassle all my specislists work together and are on Speed dial
or email ready to talk & help me with my questions without waiting forever for appts.etc.

hope this helps you are too young to give up ...you just need find right place to get answers. Hope you feel better soon.

Allergy testing has been suggested. Lioness mentioned enviromental testing for allergerns like mold, dust, pollen, cats and more. That is a simple 30 minute prick test on the back and for those types of allergies shots can help treat it.
I've had hayfever all my life and this test can even diagnose what type of grasses one is allergic to.
Your lungs may be inflamed because of allegens.
My biggest misery was inside my skin. Turns out I had 2 issues going on- chemical/natural element allergies and also diet- processed sugar feeding my internal yeast. Mind you I had no visible yeast issues.
My internal inflamation was raised by exposurer to all the hidden chemicals and elements we contact: preseratives in topicals like lotions, dish soap, grooming products and metals and acrylics, and blended fabrics like elastic, poly/cotton and elements in rubber and so many more. The test for this is the 5 Day Extended Patch Test, Google what this is about. Many, not all, dermatologists are licensed for this test, most allergists are. You may not even have external skin issues, your inflamation was be inside you body. Look up True Test Kit for this 5 Day Extended Patch Test. It is a common brand and the one I had. I was tested for about 80 elements.
Like you I've always known fragrance, good smeling or bad smelling affected me. I get a headache 1/2 a mile away from a diesel vehicle ahead of me in traffic, I know it's up ahead, before I see it and make sure my car airconditioning outside air entrance is closed off. I can't go into a store that sells tires because I get a spliting headache within a 30 seconds. Just the odor from the rubber, I get a rash from rubber contact. Rubber and elements of rubber are hidden in many of our contacts from floor mats, protective gloves, blended fibers like elastic and hundreds more. Most perfumes give me the same reaction, they make me sick, headache is the most immediate issue. I can't go into a home burning scented candles or a Christmas store full of cinnnamon fragrance. My 5 Day Test verified my allergy to cinnamon and to rubber. I had to give away my glorious lavender plants in my gardern because I got tired of holding my breath just walking by them, my reaction to their fragrance was that fast. Testing gave me the ability to avoid my allergens and learn where they are often hidden.
My second suggestion others have also mentioned. Diet. Give up processed sugar and limit natural sugar. Read The Yeast Connection Handbook by William Crooke, MD. The detox period is brutal, giving up carbs and sugars, after that the maintanence plan is doable. I learned I can eat gluten once or twice a day. It's the processed sugar which is yeasts favorite food. An overload of the yeast, which lives in our intestines, poisons us with their waste products by raising our histamine levels. Histamines raise inflamation. All is explained in the book, it's available on the internet. I've been off processed sugar now for at least 5 years, it's the best sacrifice I've ever made. It's not easy to give up sugar, it will take about 6 months of abstinance to begin to not crave it. Tell yourself when you want to grab for a sweet, "When will you learn, it's going to make you burn" then walk away. My desire to live pain free motivated me to make this sacrifice when my body was screaming at me for sugar.
Another testimonial from my sister who was in a brain fog for years, for example she'd find she walked blocks from her house and couldn't remember how that happened. For a 45 year old it wasn't dementia. Turns out she was allergic to MSG, which was more common in food years ago. She also did a detox diet and then maintance plan similar to the one I did and stuck to it for a year but now eats normally,though still off MSG and has had no issues for years. Personally I will never trust sugar again and know what chemical allergens to avoid for life.
You are desparate and will loose your mind if you don't figure out what is causing your health issues. I was at the point of suicide because I couldn't tolerate my internal pain any longer. I couldn't get more than a few hours sleep at night because of the burning and stinging inside my body. I'd get up every morning knowing the hell I would be facing again and again and again. I couldn't go on this way.
I became obsessed with the internet and spent hours every day on sites like this searching for answers. Be a warrior and fight for your health. I was. None of my recommendations will make your health worse, if you are as miserable as many of us have been you will give these suggestions a try. Please keep us posted on what you will try next.

Hi
Sorry that you have so much suffering,but let me ask if you have your hormone levels tested after endometriosis surgery? all these symptoms can come from disturbed hormones (either naturally in peri/menopause or after surgeries involving the ovaries). I have been reading a lot about menopause symptoms as I have some really bad symptoms, much earlier then usual (39) and without having any surgeries. All the symptoms you mentioned are described by proffesionals and also patients. Another thing that could be is post Covid, if you have ever had the infection. It can literally cause all types of symptoms.
Hope you find an answer and the help you need to get better soon.
Mona