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← Return to COVID vaccines and neuropathy
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I assume people with some form of neuropathy that received the Pfizer or Moderna shots and didn't have any adverse reaction don't research it and post here. I'm wondering what percentage of people with neuropathy actually get worse after the shots. Is it a statistically small group with the people who are affected being over represented in the postings? I don't doubt some people are affected to varying degrees, but it is hard to make a educated decision on the vaccines without that information.
Replies to "I assume people with some form of neuropathy that received the Pfizer or Moderna shots and..."
The Wall Street Journal, a few years back, cited the best-guess statistics for how many people who have 'adverse effects' from drugs actually report them on FAERS as 15%. FAERS is the sister site to VAERS, that collects reports on drugs while VAERS is the site for reporting on adverse effects of vaccinations.
If accurate, that means that 85% of the people who experienced adverse effects (which they thought were) caused by a drug (after it was approved by the FDA), did NOT report the adverse effect on FAERS. Doctors may be least likely to because of time or inconvenience. And pharma blow-back if identified. According to the same article.
I wish people would use FAERS as it's one of the few resources for reporting these events. You can discount affects like headaches or sniffles which may have myriad causes but note odd, rare conditions ( e.g., osteonecrosis of the jaw with bisphosphonates) that are being reported by many people, just using common sense. But many times the first hint of a bad drug is some class-action lawsuit. And those are getting increasingly harder to pursue as doctors in many states (including Florida) are increasingly self-insuring with fairly insignificant funds in escrow. And personal assets in a family member's name. So pure-contingency lawyers cannot afford to sue them without the lure of an insurer's deep pockets.
I'm not defending the eggregious lawsuits, but, for many badly-injured people, contingency lawyers have been their only hope for financing a life thrown off course.
And we're losing access to valuable information when politics and/or big money (oxymoron alert!) intrude on the data-flow.
I promise to drop the subject now, lol, but just hope peoples' drug research includes a glance at FAERS as it can help someone head off a nasty surprise (e.g., again osteonecrosis of the jaw, yikes).
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Hi @krn, I have small fiber peripheral neuropathy and have had both Pfizer vaccines and the first booster with no side effects other than the normal ones that have been reported. It hasn't made my neuropathy worse. I do believe neuropathy is far more common after Covid infection than after vaccine. I've also had COVID after having the vaccines and the booster and it was a really mild case which I'm guessing may have something to do with having the vaccines and booster.
@sueinmn posted earlier in this discussion with some statistics which I believe were from the VAERS database - https://connect.mayoclinic.org/comment/628952/