← Return to Aromatase Inhibitors: Did you decide to go on them or not?

Discussion
Comment receiving replies
@vivi1

I went through all these inquiries after lumpectomy. I was/am early stage ER+ PR+, 1.2 cm IDC, no nodes, Oncotype 8, but LVI. My margins were 2 mm except in one area where there was some evidence of atypical hyperplasia at 1 mm from the margin. I was very negative about hormone blockers from day one because of my osteopenia and only consented to low dose tamoxifen. My RO recommended no radiation. I called my breast surgeon who was skeptical and asked, what if you can't tolerate the tamoxifen? I researched the subject. The Tufts tool https://www.tuftsmedicalcenter.org/ibtr/ showed a good percentage ipsilateral risk reduction with radiation and I also found that radiation is considered more effective than hormone therapy in reducing risk of a new primary or recurrence. Given the LVI and small margin I requested whole breast hypo-fractionated radiation, which consisted of 16 sessions and no tumor bed boost. As it turns out, I could not tolerate tamoxifen and quit it. But I am finding anastrozole very tolerable. I take it in the morning and then walk the dogs and practice yoga, both physical actions perhaps lessening the pill's side effects. My point here is that we seem to be fighting the standard-of-care, but at what risk? Sure, I could reject radiation and hormone therapy because they may not lower mortality, but, as my RO said, I would perhaps confront another BC down the line. No thanks. I don't want another surgery or mastectomy when I am elderly. Also, I do not want to destroy my bones, so I changed my diet and keep up my exercise. After reading a number of books about BC, diet, and recurrence, I have become more open to NCCN standards alongside of alternative treatments. Our aim is the same: good health and no recurrence or metastasis.

Jump to this post


Replies to "I went through all these inquiries after lumpectomy. I was/am early stage ER+ PR+, 1.2 cm..."

My oncologist(s) followed NCCN too and I found the NCCN website very helpful. But. I think that people are being offered various different radiation protocols. In my case, the radiation was site-specific only and didn't include the whole breast. And would not have reduced any risk anywhere else in either breast. Your course was more aggressive and I suspect there are myriad variations in between. And of course each person's body and cancer is different from any others.

What alternative treatments are you using or contemplating?