Oh my goodness, 20 years of suffering is a very long time. I hope you find some answers soon.

Mayo Clinic also has a Pain Rehabilitation Clinic that is very successful in helping people to cope with their chronic situations. One of my fellow mentors, @rwinney is a graduate of the program. https://www.mayoclinic.org/departments-centers/pain-rehabilitation-center/sections/overview/ovc-20481691

@rwinney and other members of the Chronic Pain group are very active in this discussion. https://connect.mayoclinic.org/discussion/welcome-please-introduce-yourself-welcome-to-the-new-chronic-pain-group-im/
You can click on that group and there will be an option to read Oldest to Newest messages. Click on there, then, Newest. That will take you to the most current conversations.

Are you currently under any treatments for your symptoms?