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I detect a smell even when it isn't present
MAC & Bronchiectasis | Last Active: Nov 5 12:49pm | Replies (29)Comment receiving replies
I have bronchiectasis as well and in testing for second lab to verify my first NTM diagnosis. About 5 years ago I started with hypersensitive smells, perfume, cleaners, laundry detergent , etc. Sometimes impossible to eat in restaurants. I used to love these smells! I have autoimmune issues now and doctors in New Orleans are in new stages of treatment for this. . Taking Symbicort and saline neb and using an Accapella. These coughs that I am trying for sputum lung clearing are hard on my right eye. Last year I had intercranial surgery for aneurysm and AVF in rt dural area and have some eye problems. Does anyone know how I can clear without producing so much on my head??? Headaches are worse as well. Dr appt for emu rt eye is a long time from now.
I hope your smell sensitivity and lack of smell issues get better for you both. Hope all are having a Happy Easter! Carol B
Replies to "I have bronchiectasis as well and in testing for second lab to verify my first NTM..."
Hi Carol, I am 68 and live in New Orleans too and have had similar symptoms off/on with sense of smell for past 10 years. I was diagnosed with bronchiectasis last August which I didn’t even know I had, a CT scan of my kidneys showed it initially. A CT was done recently as I contracted a difficult to treat double pneumonia while visiting Costa Rica in February. Right now I am awaiting results of 3 sputum cultures that were done over 3 days for possible NTM. Are you happy with the treatment you are receiving in New Orleans? If so, may I ask who your pulmonary physician is? Hope you are able to find a way to relieve the pain in your eye so you can comfortably do you clearing exercises 🙂 Judy F
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@cmb1 ... Sorry to hear that you have difficulty coughing up mucous without causing pain in your head and eyes. I have found that lying down for postural drainage with my head cushioned helps. There are also head bands for headache sufferes that might give you some relief, but changing position and supporting head all around if necessary would be my first suggestion. I found that zinc supplement helps with GERD treatment to decrease the airway sensitivity. Be good to yourself and find some comfort.