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Idiopathic Small Fiber Neuropathy Research
Neuropathy | Last Active: Apr 4 8:41am | Replies (132)Comment receiving replies
Thank you Chris for taking the time to reply back to my message. I thought maybe I was the only person with SFN that had the balls of my feet so painful to make walking nearly impossible. I thought maybe my mind in running away with this thing and could it be fibromyalgia on top of the SFN. It hurts to cross my legs (the muscles) in fact my major muscle groups ache something terrible with the least exercise. I live in a small town so taking advantage of some of these treatments is not available here. I do have tinnatis continually, my ears burn when I lay on a pillow like a norma person and I can only listen to earbuds for a short time before that becomes uncomfortable. Feels like I've got a bug crawling in my ear canal. I can still drive, but the burning of my thighs and buttocks is just a matter of endurance. How much I can ignore the pain. The facial massage, is it on the face? And that helps the feet? Thanks again
Shelton
Replies to "Thank you Chris for taking the time to reply back to my message. I thought maybe..."
Hi there Shelton. Thank you for your response. I want to clarify a couple of things. MFR is a hands-on therapy and it means Myofascial Massage Therapy. It is for the entire body including the face. However, in this case, I was referring to the feet. The actual process for feet is called bilateral leg and foot release followed by soft tissue mobilization of the plantar area. The therapist uses cross-fiber friction techniques. I happen to be fortunate enough to have two therapists at every session because of the severity of the SFN. So, one does the release placing my feet against her shoulders. The other one follows with the cross-fiber friction. If you would like more information you can find it at https:connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr--for-treating-compression-and-pain/
If you feel you want to pursue MFR you can go to "Find a Therapist" on myofascial .com OR you can let me know where you live and I will find you a therapist to contact if there happens to be one in your neighborhood.
Do you think it is worth a try?
May you have happiness and the causes of happiness.
Chris
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Hi Shelton
Have you ever seen a Podiatrist regarding the pain in the balls of your feet? If not, you should. You may have a condition called meatarsalgia, which is unrelated to PN. It's treated with orthotics, NSAIDS, etc.
Just a thought.