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Chronic Pain members - Welcome, please introduce yourself

Chronic Pain | Last Active: 18 hours ago | Replies (7067)
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@daliea

Hi, I was diagnosed with fibromyalgia about thirty years ago but it never interfered with anything that I wanted to do.In late February of 2020 I became ill enough to scare me into going to theER. I was tested for the flu which was negative.As I recovered I began having tingling in my feet and it has now progressed to burning pain,electric shooting pain,joint pain and muscle.It has also effected my eyes. I don’t have a diagnosis yet.

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Rachel, Volunteer Mentor | @rwinney | Apr 18, 2022

Hi there @daliea.Welcome to the conversation, glad to have you join us. I'm sorry to hear that you are experiencing neurological difficulties since your illness.

Have you heard of Central Sensitization Syndrome (CSS)? It is a process that can upregulate the central nervous system and peripheral input sensory system causing many of the symptoms you describe.

Here is a discussion about CSS you may be interested in:

- https://connect.mayoclinic.org/discussion/has-anyone-been-diagnosed-with-central-sensitization-if-so-id-like-to/

You may find this video about CSS helpful as well. It's presented by Mayo Clinic's Dr. Sletten. He explains how other diagnosis such as fibromyalgia and neuropathy fall under the CSS umbrella:

- https://www.youtube.com/watch?v=vJNhdnSK3WQ

How long have you been having the symptoms you describe? Are you working with a neurologist or having any testing?

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