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Transverse myelitis w/poss. CNS inflammation, still confused

Spine Health | Last Active: Jun 27, 2025 | Replies (49)
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Profile picture for drigg97 @drigg97

My neurologist thinks that all the symptoms could be transverse myelitis except for the facial burning and tingling/twitching. To be honest I have puzzled all of the neurologists I have seen so far. They just cannot quite put their finger on a particular diagnosis that fits everything

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Replies to "My neurologist thinks that all the symptoms could be transverse myelitis except for the facial burning..."
Rachel, Volunteer Mentor | @rwinney | Apr 18, 2022

@drigg97 Well, keep digging for diagnoses. It's so important to rule out possibilities, but exhausting in the mean time. I feel for you. How long did you say this all has been going on?

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katcollins | @katcollins | Apr 13, 2023

I understand your frustration with all the doctors. I was in two hospitals and saw numerous doctors before I found one who could help me. Best of luck to you all.
Kat

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