As I write this reply (comment) I believe it will be perceived, unfortunately by you to be of NO or little value ... I asked a similar question regarding my post-radiation, Head & Neck side effect-related, chronic Dry Mouth and initially felt this same way when reading the following, reply (comment), "It may go away, it may never go away, your job is to live with it and accept it because ACCEPTANCE is the answer to ALL of your/my problems today...." BTW....this reply (comment) has proceeded to change my life, forever....

Your description is word perfect. Thank you. Now that I know that "tired to the bone" is what others feel as well it is somehow easier to take

I take oral chemo for chronic cancer and I have that kind of fatigue. I am retired, so I can pace myself. This is what my day looks like:

1. I try to get a good 7-8 hours of sleep. Easier said than done bc I am often wakeful thru out night. Dry mouth and anxiety.

2. In the morning, I hydrate, do 30 minutes of gentle yoga, and putter around tidying up. I usually don't have enough energy for a shower until noon.

3. After a shower, I spend an hour eating lunch and chilling with a book, podcast, or knitting. I eat four smaller meals a day. Avoiding starch, sugar, and salty food helps with energy. Restaurant food, especially fast food, makes me crash.

4. Between 1 pm and 5 pm is my "peak" time. I do errands, maybe see a friend for coffee, do gardening, take a walk, etc.

5. I start winding down about 4 pm and start supper about 4:30 (unless I put something in the slo cooker in the a.m. I like soup.)

6. Supper is ready when my husband comes home for dinner and the kitchen is clean. I have just about enough energy to socialize with him before bed time.

I used to be an extremely high-energy person, very ambitious. It is hard for me to slow down, and I have a hard time not berating myself for what I don't do. But that kind of negativity really drains me. So I am trying!