I feel you exactly. I would check on disability though, I honestly had no problem on that part, though what I get is a very small fraction of what I was making as a Global Finance Manager.
I will honestly say I’d be ok being told they won’t do this or that, if they take 30 seconds to explain to me the rationale. If they can’t explain, or TALK to me about how to physically live with this to maintain what mobility I do have, then I’d like them to point me in directions to resources that can help. Like you, I have to research things, beg for physical therapy, podiatrist, tests… and for the life of me I do not know why he won’t do an MRI or blood work for certain metals and cancers. Anyway, communication is key. My SC neurologist was OK, but my new one in NC is very very sad. But, that’s why I want a new one, to get fresh eyes maybe, and hopefully better ideas and communication. I might find it doesn’t exist here, but I’m giving it a try. It has been almost 3 weeks since my referral to get new doc in my current health network, but the only communication I’ve gotten is that the referral has been received and they’re reviewing, and that it normally takes 2 weeks to process. I’m giving them some grace period since it’s Easter and Spring Break time.

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