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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)

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@msmunro

I suffer from extreme neuropathy from a spinal cord injury due to MVA. I am 74 years of age. I live with my husband who has banished me to my room because he can’t stand my pain. I have a little dog, Rossi, who doesn’t understand that his 10 pounds feels like an elephant in high heels tromping across my legs or his little head resting on my thigh is akin to someone resting an anvil on it. I injured my thorasic, cervical, lumbar and saccral spine areas. It was indeed the Jackpot. I can kind of lurch around with the help of my rolly but can’t stand longer then it takes to brush my teeth. As far as activities go, I keep up on news events. I am a MSNBC girl. I also have carpal tunnel in stereo so I cannot hold on to anything. The area alongside my bed is like a swamp from all the coffee, water, juice and adult beverages I have spilled. After fighting with a HMO that would not treat my broken bits, I have changed insurance, much to my husband’s chagrin, and am seeing the head of neurology with the University of Washington in 11 days and 6 hours (tick tick). I would like to meet others who are in the same boat and maybe we can help each other to not go stark raving mad from constantly feeling like we are on fire.

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Replies to "I suffer from extreme neuropathy from a spinal cord injury due to MVA. I am 74..."

Welcome @msmunro, It must be difficult for you not having support and understanding from your husband about the pain from your spinal cord injury. There is a post by @jenniferhunter in another discussion on spinal cord injuries that has several videos and links that you may find helpful -- https://connect.mayoclinic.org/comment/643800/

I'm glad to hear you have an upcoming appointment. I normally like to write down my questions that I am trying to get answered at an appointment, especially if it's an important new appointment. Do you have questions you are trying to get answered to take with you to the appointment?