Dr did not continue the Capecitabine (Xeloda) But was considering him for another clinical study "NP-G2--044 as Monotherapy and Combination Therapy in Patients with Advanced or Metastatic Solid Tumor Malignancies" he consented - Verbally on Mar 28th but new Ct's of chest, abdominal etc had to be done - finally got testing set up for yesterday (April 15th) but from the last appointment on Mar 21st he has went down hill rapidly - by time the clinical nurse confirmed the testing appointments he was to the point where i thought and believed that the study would not be beneficial to him - more harm and a waste of time, money etc for the study and would benefit to another - I asked that he be seen by his oncology Dr. before testing done - this week he went don rapidly refusing to eat - he would take the food but pass it off to the dog or outside cats. - Sleeping 16-18 hours or more and not moving around only to go to bathroom or to go get coffee or milk.
The radiology department called to confirm we were coming for cts. etc. which were on hold - wires crossed and oncology nurse had put them on hold - so I called to let her know that she should re-contact them and make sure they were still on hold just in case - I explained what was going on and told her that I wanted him admitted yesterday -
Dr confirmed and went along with my conclusions and views - he is now in IU University Hospital I came home at least for today to wrap up some things that need to be done - his heart rae on o2 was good but bp 70/57 and weight down to 107 - So
He is " admit him to the hospital for IVF (Intravenous Fluid) and likely placement to a nursing
home. If he declines rapidly, he may even become a candidate for inpatient hospice. Of note, I also discussed code status, and he is in agreement with being DNR/DNI"
SO today this is where we stand - a called a couple hours ago talked to nurse - said he was hard to understand and a riddle - - so it does mot sound good - sounds in my mind he will not be leaving University hospital but I could be wrong -
It sounds as if your journey with him is coming to an end. You have been incredible to have stayed by his side all of these years with no help from his family at all. You really deserve an award. I can imagine very opposite feelings going through your mind after all this time.
Please give yourself time to heal after this is all over as you were as much a patient/victim of his family as he was.
Merry