← Return to I am losing hope, drs have no answers for me…
DiscussionI am losing hope, drs have no answers for me…
Women's Health | Last Active: Jan 15 8:39am | Replies (23)Comment receiving replies
Hello,
Please dont lose hope! I had some similar symptoms you describe. You need to find the right doctors. You sound like me a few years sgo, I had lost hope snd reduced quslity of life until I was visiting relatives in Michigan and got very sick while there and was sent to a Beaumont Allergy Clínic in R.O. who referred me on to went the not for Profit University of Michigan. I was then sent on to 3 More specialists and got a diagnosis very quickly. After seeing múltiple for profit doctors
the not for profit university bases medical care changes my life for better. I was put on a simple over the counter régimen that changes my quality of life immedistely.
Is inexpebsive and liftwd an eleohant off me the chronic fatigue ais much better.. Noww i can function and not stay in isolated at home Low quality of life condition because of múltiple chemical sensitivities. I Aldo had 2 doctor's show me am allergy mapa and told me yo move south which changes my entire life from being hedridden October to May from E.B.V. as they figures iutbmy trigger was the cold, damp winters. I thrivr in the heat instead. So I took my life back! After being so well treated there in Michigan, I was sent yoban allergist immunologist. He recignized what I had and instead of extensiva testing he said lets try a treatment plan and see how you do. It's changed my quality of life. I returned home I saught out another
local university for follow up care at Not for Profit Center to help figure out the other problems I was having like enlarged and fistended gut. I then was went to the liver and hepabillusry specislust , was actually viven another diagnosis as am enlarged liver which is reversible through dieta .mediterránean planta bases not vegan diet.. I was golf it was from tylenol used yo control my R.B.V. in winter months severe fevers, now instead i use ice instead of tylenol. They gradually got me off all the asthma and allergy steroids docs put me on. I found for Profit docs put me on meds which causes horrible side effects Made me sicker then the symptoms for taking them. Steroids also gave me cushings syndrome, which add unusual weight to your upper body. i got off all steroids except docs say I may need for emergencies and took my life back and my body slowly returning. Energy returning, and can exercise now and gone down 3 sizes just by rating half my plate Cooked Green mixed veggies snd other half cut in half lean protein & starchy Veggie. Use smaller plate for portion control...which helps tremendously. The noderste exercise helps w fatigue snd brain fog. Hubby got me an auto Matic peddler u plug in can sit and peddle. It really helps a Lot with Braun fog and fatigue . Fighting the inactivity all these health issues causes really make a diference, ser small goals a few times a week then add More days put on some upbeat música to peddle to and you will feel better....
I just got the the fodmap the app really helps me make better choices to feel better too. Which helpee me choise the better veggies for med. diet, the good Is do good..my hubby found a Cuisinart griddler Is a gane chsnger grillimg veggies tastes way better and do Easy..I found i had to cut out dairy & corn and sugart drinks swapped out for water and lemon.. Aldo gut doc told me low fat Activia yogurt kills the accumulation of bad bacteria in gut along w certain fermented foods
& stromg probiótics suplementos try Swanson.com had Hugh quslity but inexpensive choices which has eased my stomachs distensión.
which i realized by talking to pharmcist and reading insert Pagés of side effects of meds I was prescribed. Pharmacist helped me Sort out symotoms and side effects too.
Because if these positive diagnosis at not for Profit university teaching hospital medical centres I foundca way better quality if care. Maybe it would help you too. They so Easy to real with, and very caring take More Time as they patient driven not Profit driven. As long as I stay in warm climate my E.B.V stsys in remissión. When cold weather I avoid travel back tisee relatives up North the cole or E.B.V. triggers on on w a vengeance. Docs say my En.B.V. Is could mediantes.. also found done supplements help during cooler remos to keep e.b.v. at Bay one works for me Is lysine. (There are others, you can resesrch, might help.) We went for Vk to try out first which southern ststes Warmer climate was better for me before moving. We got an RV and traveled diferentes Places in winter to see where I felt best then relicated. Was a game chsngercand I took my life back. So dont give up, answered areboug there but it really matters whose advice you week. Not for Profit instead of for Profit deriven carecwas another game changer for me also. The diference
Is correct diagnosis and a team of
Qualified health profesionals willing to work together to help me Sort out my various problems one by one I Also ended up w gall stones which was why i had constant pain you describe in back and gut etc. Now I have a manageable health condition, and they follow up by telehealth which is do convenient saving gas & hassle all my specislists work together and are on Speed dial
or email ready to talk & help me with my questions without waiting forever for appts.etc.
hope this helps you are too young to give up ...you just need find right place to get answers. Hope you feel better soon.
Replies to "Hello, Please dont lose hope! I had some similar symptoms you describe. You need to find..."
How were you diagnosed with the ebv? Did you see an infectious disease specialist? What symptoms did you have? Oral lesions? And what simple overr the condition niter regimine did you use?
Scotty, I can relate to a lot of what you have experienced, and thank you for sharing your various/alternatives to traditional allergists and how they helped you.
I have been missing in action "mia" for the last few weeks due to some personal emergencies and am late to responding.
May I use your testimonial in my blog? Thank you again.
jazzyoldbroad.com