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Anyone taken Evenity (romosozumab) for Osteoporosis?
Osteoporosis & Bone Health | Last Active: Nov 5 10:09pm | Replies (1348)Comment receiving replies
I guess I haven't heard of this new medication. At 37 I fractured my T9 raising my arms over my head and from there eveything snowballed. Had my first DEXA scan which showed extreme minus numbers for hips and spine. Continued to fracture bones with normal movement. Pre-menopausal. Started on Fosamax daily(I think. It was so long ago). Worked some but wouldn't sustain. On to Forteo. LOVED the bone growth with this. I gave myself injection daily for 2 years. That is the limit on Forteo. At the same time I was doctoring at Mayo with these bone issues, spots on body, elevated WBC...(diagnosed in 2005 with Systemic Mastocytosis which I gave myself 3 shots a week of Interferon for 3 years) I then went on to Fosamax to sustain the new bone from Forteo. That did well. My doc decided that since I had started so early in my years that I should have a drug 'holiday'. It was almost 4 years when I fell on ice and fractured my pelvis in 5 spots. THE WORSE EVER. 1 week hospital, 3 weeks transitional care. Home to a 4 level home with a walker and crutches. On to Prolia and my endocrinologist says will be my go to for 'ever'. I am now almost 66. I continue to have DEXA scan every 3 years, And Prolia every 6 months. Had 2 minor stress fractures in my ankles last summer. Wore a gel brace on one and that got better and a boot on the other. Stepping off curbs, dip in the yard, ice(live in North Dakota)....frighten me daily.
Replies to "I guess I haven't heard of this new medication. At 37 I fractured my T9 raising..."
All the drugs for osteoporosis have issues, some worse than others. Prolia has only been on the market for a tad over ten years, thus no long-term safety or results record. And 117, 000 adverse effects listed on the Federally-funded FAERS adverse effects website.
For what it's worth, and understanding that doctors' opinions can legitimately vary widely, my endocrinologist thinks Prolia is OK for short-term use if other options are less good, but not long-term use. It might be the right option for you but it could pay to know exactly why it's the best option versus all other choices. And the basis for your doctor selecting it.
Most old-line osteoporosis drugs were assumed to be given to far older women and with a then-shorter actuarially-predicted lifespan. There's not great data on the effects of these drugs over decades. So we're in a whole new situation and hopefully more new, 'intelligent' drugs will come along to help keep bones healthy and self-renewing and osteoporosis a thing of the past.
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Did the medical community have any idea why you such loss of bone that early in life? I'm reading a lot about bone health and it seems as if medical science is still learning a lot about the whole renewal cycle for healthy bones
Hopefully girls today will have better osteoporosis prevention drug choices as all of the current ones have some issues. I wish we could make young girls, many of whom are starving to achieve the bodies of 'influencers' whose bodies are more likely the result of cosmetic surgery, really care about the consequences of eating disorders while they are in their prime bone-growth years but I digress.