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← Return to Relapsing Polychondritis
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Autoimmune Diseases | Last Active: Mar 25 12:23pm | Replies (39)
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Hello @lbynum, Welcome to Connect. You will notice that we merged your post into an existing discussion on the same topic. I would like to bring @nibor63 @mcwilliamssr @rpwarriorlady @monikamouse @ethellee97 and others talking about RP into the conversation so that they can share their experiences with you.
Have you thought about seeking help or a second opinion at a major teaching hospital or health facility?
Replies to "Hello @lbynum, Welcome to Connect. You will notice that we merged your post into an existing..."
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I am sorry that I failed to answer you a lot sooner.
I do go to Duke University for my eyes as RP has done some damage there. I see a Optomalogist there. I have seen an ENT there as well. A surgeon for a possible CFS leak, my Rheumatologist thought I had, the imaging was poorly done at my local hospital. Thankfully I didn't have one. I believe the doctor that I see is really good, I still suffer with ongoing pain, swelling, I also see other doctors. An orthopedic doctor who helps with the damage in my spine, knees, hips. As well as other doctors. I am just curious as to what other treatments others have had. I have never used steriods except on two short occasions. I have had both knees replaced and can't risk the damage from Steriods. I have osteoporosis. Plus, Sojgrens, Hypothyroidism, Chronic Lymphocytic Thyroiditis, RA, MGD, and so on.