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Stage 1 Bladder Cancer/Gemcitabine

Bladder Cancer | Last Active: Mar 9 9:27am | Replies (39)
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@sue225

My husband was unable to tolerate gemcitabine. But he had had so many TURB surgeries that his bladder lining was thin and it was painful for him. The urologist had had many positive experiences with his other patients. gemcitabine was tried because my husband was also no longer able to tolerate bcg which worked well for the first 10 to 12 years. So in Nov. 2021, he had a total radical cystectomy and he has made a total and full recovery and is in great shape rebuilding parts of our deck! He is 80. He feels great now.

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Replies to "My husband was unable to tolerate gemcitabine. But he had had so many TURB surgeries that..."
blades | @blades | Apr 14, 2022

Thanks so much Sue for sharing your experience. I'm happy for you and your husband, and admiring of his -- and your -- perseverance through what clearly were difficult times. I have had 5 gemcitabine infusions, with one more to go. None of them were painful. My bladder did not have to go through the trials your husband's did. Following nos. 4 and 5, I had sudden tiredness and pressure/brain fog/wooziness especially after no. 5. That was of some concern to me. My 6th is scheduled for 4/18. My worry was about the possibility of symptoms similar to what I'd had, but permanent. My hunch is that's unlikely. Continued good luck to you and your resilient spouse.

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