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@colleenyoung

@helpingrachel, I can understand your feelings of isolation. Even when doing an internet search about detrusor overactivity, most of the information is geared towards the adult population. Information related to children focuses on overactive bladder, bedwetting and bladder training.

I'm bringing @astaingegerdm into the discussion to see if she has any experience to offer.

@helpingrachel, am I understanding that your daughter at first could not control her urinary urgency and not she has the opposite issue of total urinary retention and cannot void on her own? This must be distressing for both of you. Does she still have pain and spasms?

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Replies to "@helpingrachel, I can understand your feelings of isolation. Even when doing an internet search about detrusor..."

thank you very much for your comment! Yes, in July of last year Rachel began having severe pain spasms, aswell as leaking urine without knowing, bedwetting every night etc. Her paediactric urologist prescribed Solifenacin but it did not help her pain or leaking. Then in February she entered total urinary retention and has not been able to void since.
She underwent urodynamics last week which is when we found out the diagnosis of detrusor overactivity. It's not Fowler's or Hinmans or any specific syndrome. Which adds to the isolation!