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Idiopathic Small Fiber Neuropathy Research
Neuropathy | Last Active: Jun 19 12:24pm | Replies (135)Comment receiving replies
Hi magnum52, I am wondering if you got any help from your visit to the Mayo Clinic last year ? I was diagnosed with SFN in 11/18 and it’s gotten so severe that I have an intrathecal pump giving me Dilaudid all day long. Even this only gives me partial relief, I still have severe burning, horrible ‘freezing’ feeling and numbness in my feet and legs much of the time. I tried all the oral medications used for nerve pain before I went to the pump.
Hope they were helpful and looking forward to your reply.
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I went there only to confirm my diagnosis of idiopathic small fiber neuropathy. I knew going in that they would not be able to offer me any treatment with that diagnosis. They confirmed the diagnosis with no treatment offered. I am currently involved in a 7 day trial of a DORSAL ROOT GANGLION stimulator for my neuropathy. It is made by Abbott Neuromodulation, and they are the only company that makes a DRG stimulator. You do the trial first and if it works, they will implant the stimulator usually in your lower back. It’s all done on an outpatient basis. For some, it is amazing. It’s helping some. I am still adjusting the settings daily on it for optimum results. I assume your neuropathy is idiopathic as well. Unfortunately, there is little to be done for ISFN outside of the usual drugs, blocks, epidurals, etc. For a lot of people they are useless. You need to research the DRG stimulator. Tons of stuff out there about it.