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Neuropathy in the brain from post MVD operation

Neuropathy | Last Active: Jun 21, 2022 | Replies (10)
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@johnbishop

Here is some information that discusses the possibility that the MVD may need to be repeated for some people.

Repeat microvascular decompression for patients with persistent or recurrent trigeminal neuralgia:
-- https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6504312/
Unusual recurrence of trigeminal neuralgia after microvascular decompression by muscle interposal:
-- https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3539511/

Mayo Clinic has a patient portal where you can send messages to your doctors or care team. If you have been a patient at Mayo Clinic, I think I might try sending a message to the doctor I saw on the patient portal to see if you can get a second opinion. If you haven't already setup the patient portal and you have a Mayo Clinic ID number, you can easily create an account on the portal here - https://onlineservices.mayoclinic.org/content/staticpatient/showpage/patientonline

Have you used the Mayo Clinic patient portal before?

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Replies to "Here is some information that discusses the possibility that the MVD may need to be repeated..."
earringsbylulu11 | @earringsbylulu11 | Apr 13, 2022

Thank you so much for the additional information. I was told by Mayo Clinic that I should not have any type of intervention operations. I would be open to anything to relieve this pain for the trigeminal and mostly for the Trigeminal Neuropathy that I now have the right side of my brain. I’m not sure if that can be fixed but I do need help. John thank you for getting back to me, you sent me more information than I’ve gotten in a year with other doctors

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