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Neuropathy in the brain from post MVD operation

Neuropathy | Last Active: Jun 21, 2022 | Replies (10)

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@earringsbylulu11

I had trigeminal neuralgia for two years. I had my MVD operation a little over a year ago. Prior to my operation I had strong ear pain attacks and that was it. Now and for the past year after my MVD operation I am now having three attacks a day like I said along with many other symptoms that are destroying my life. I’ve been to my doctor and he told me nine months ago that there was nothing he could do. U Of M has basically cut me off including their pain clinic that hardly helps me. I have been to several hospitals for help i’ve been to Mayo clinic in March stayed for three days doctors were very nice but I’m still in the same predicament I’m not sure what to do. Again the doctors were very kind but I still walked away without a diagnosis and in tremendous pain I have tried so hard but they told me if UofM can’t fix it either they we. That was my other hospitals Mayo Clinic. I really like the doctors at Mayo Clinic I just thought I’d walk away with more help Ian’s answer. I’m sorry but I’m getting upset just Talking about it. Any help would be greatly appreciate it and thank you for getting back to me

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Replies to "I had trigeminal neuralgia for two years. I had my MVD operation a little over a..."

Here is some information that discusses the possibility that the MVD may need to be repeated for some people.

Repeat microvascular decompression for patients with persistent or recurrent trigeminal neuralgia:
-- https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6504312/
Unusual recurrence of trigeminal neuralgia after microvascular decompression by muscle interposal:
-- https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3539511/

Mayo Clinic has a patient portal where you can send messages to your doctors or care team. If you have been a patient at Mayo Clinic, I think I might try sending a message to the doctor I saw on the patient portal to see if you can get a second opinion. If you haven't already setup the patient portal and you have a Mayo Clinic ID number, you can easily create an account on the portal here - https://onlineservices.mayoclinic.org/content/staticpatient/showpage/patientonline

Have you used the Mayo Clinic patient portal before?