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@naparker

I've been tapering Prednisone by 2.5 mg every two weeks. It was going well - not much pain - until I tapered from 15 mg to 12.5. That was a week ago. A week later, I'm still experiencing pain in both shoulders and upper arms. It's very similar to the pain I experienced before being diagnosed with PMR. I've got a call into my rheumatologist to see if I might taper by one mg every 2 weeks instead of 2.5. Fingers crossed that will help with the pain. I think tapering too quickly by too much could bring on a relapse in the disease. Thanks everyone for this discussion. You are all so supportive and informative. It really helps - I learn a lot and don't feel quite so alone with this condition.

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Replies to "I've been tapering Prednisone by 2.5 mg every two weeks. It was going well - not..."

Same here. 5 mg was too much, i.e. from 4 pills down to 3 and the pain started up again, although not as horrible as before. So I upped it by 1.25 mg (so 16.25) which has helped a bit and thankfully, after emailing the Neurologist, I have an appointment at the clinic today. Relief, because I've been more or less winging it on my own out here, making unilateral decisions about my health. The slower with the tapering, the better. I think you've made a smart choice in the 1 mg. bi-weekly. All the best with your journey.