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Can't get an appointment: Any tips on what to do?

Visiting Mayo Clinic | Last Active: Aug 12 12:33pm | Replies (193)
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@takingcare

I just received an email this morning, I was denied. Small fiber neuropathy FGFR3, absolutely reeling from this news as is my husband. No doctors to help me where I am, can’t get into a neurologist specific to my gene issue for another 6 months. Feeling like a lost cause….anyone else?

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Replies to "I just received an email this morning, I was denied. Small fiber neuropathy FGFR3, absolutely reeling..."
Colleen Young, Connect Director | @colleenyoung | Apr 12, 2022

@takingcare, I can certainly understand your disappointment being denied an appointment. Getting that letter is hard. But there may be options for you.

Some of the top tips members share their tips on getting an appointment include:
- Try a different Mayo Clinic campus. Sometimes a particular department may be at capacity at one location but not another.
- If you self-referred, ask your PCP or current specialist if they would make a physician referral.
- Seek care at a Mayo-affiliated facility in the Mayo Clinic Care Network https://www.mayoclinic.org/about-mayo-clinic/care-network/network-members

I also invite you to join the discussions about small fiber neuropathy in the Neuropathy support group here: https://connect.mayoclinic.org/group/neuropathy/

Here are some specific discussions to get you started.
- FGFR3 levels are high any treatments? https://connect.mayoclinic.org/discussion/fgfr3-levels-are-high-any-treatments/
- Small Fiber Neuropathy: What helps? https://connect.mayoclinic.org/discussion/small-fiber-neuropathy/

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